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Newsletter

Stay Informed with Our Newsletter

Our small media team works hard to publish newsletters monthly or bimonthly, bringing you the latest updates, expert insights, and community stories on Ehlers-Danlos syndrome and related conditions.

📖 Read all articles here: https://www.chronicpainpartners.com/articles/


📚 Browse the last editions:

  • EDS Newsletter October, 2026: "Non-POTS dysautonomia", sex difference in hEDS & HSD, vocal changes in EDS, and more!
  • **NEW LINK** for Webinar from Sept 22nd is Now Available to Watch!
  • Webinar from Sept 22nd is Now Available to Watch!
  • Join Us TOMORROW For a FREE Webinar on Tue Sept 22nd at 7:00pm EDT!
  • EDS Newsletter Sept, 2026: What Is “Neuro-EDS” and Why Are People Talking About It?

All newsletters ever published:

https://chronic-pain-partners-eds-awareness.optin.com/n/edsawareness

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EDS Awareness is the primary initiative of Chronic Pain Partners, a patient-led nonprofit and a trusted voice in the Ehlers-Danlos community since 2011. Our mission is not only to raise awareness of Ehlers-Danlos Syndromes, but to support patients in navigating life after diagnosis.

Through our articles, newsletters, multimedia, and community storytelling, we help patients, medical professionals, and the broader community better understand EDS and its wide variety of comorbid conditions. By translating emerging research and connecting patients with experts, we turn complex medical information into clear, actionable knowledge that patients can use. We also offer practical guidance for everyday life with EDS, from addressing medical trauma to identifying the best supportive tools.

At EDS Awareness, our goal is to ensure every patient has the support and resources they deserve to live a full and active life with EDS.

Chronic Pain Partners, a US-based non-profit 501(c)(3) organization.

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