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Newsletter

Stay Informed with Our Newsletter

For the past two years, our small media team has been publishing newsletters monthly or bimonthly, bringing you the latest updates, expert insights, and community stories on Ehlers-Danlos syndrome and related conditions.

📖 Read all articles here: https://www.chronicpainpartners.com/articles/


📚 Browse the last editions:

  • EDS Newsletter August, 2026: Catch up on what you may have missed!
  • Registration is Now Open for Our FREE Aug 14th Webinar at 12pm EST Featuring Professor Mark Whiteley!
  • Webinar Aug 14th: "EDS, POTS and Pelvic Congestion – What Do We Know, What Is Likely to Be True, and What Is Hype?"
  • EDS Newsletter July 2026: New Study Finds Shared Protein Signatures in hEDS and HSD, Disability Pride month, and more!
  • The New 12-Min Short Documentary Highlighting John Ferman’s Legacy: Where People Understand

All newsletters ever published:

https://chronic-pain-partners-eds-awareness.optin.com/n/edsawareness

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Upcoming

Webinars Schedule

Head-and-shoulders portrait of Professor Mark S. Whiteley wearing navy blue medical scrubs embroidered with "The Whiteley Clinic – Pioneering Vein Treatments." He has short gray hair and a slight smile and is photographed against a plain light-colored background.

Free Webinar With Professor Mark S. Whiteley: “Pelvic Congestion and Venous Compression Syndromes – What Do We Know, What Is Likely to Be True, and What Is Hype?”

Susannah Fox

Live Webinar with Susannah Fox, Author of Rebel Health

See full schedule

Webinars

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EDS Awareness is the primary initiative of Chronic Pain Partners, a patient-led nonprofit and a trusted voice in the Ehlers-Danlos community since 2011. Our mission is not only to raise awareness of Ehlers-Danlos Syndromes, but to support patients in navigating life after diagnosis.

Through our articles, newsletters, multimedia, and community storytelling, we help patients, medical professionals, and the broader community better understand EDS and its wide variety of comorbid conditions. By translating emerging research and connecting patients with experts, we turn complex medical information into clear, actionable knowledge that patients can use. We also offer practical guidance for everyday life with EDS, from addressing medical trauma to identifying the best supportive tools.

At EDS Awareness, our goal is to ensure every patient has the support and resources they deserve to live a full and active life with EDS.

Chronic Pain Partners, a US-based non-profit 501(c)(3) organization.

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