Being diagnosed with Ehlers-Danlos syndrome can feel like a major feat to some. Maybe you’ve been advocating for a diagnosis for a while, or maybe this was a shock to you. In both scenarios, sometimes you get to the other side of the diagnostic process and realize it doesn’t just stop there. Now is the […]
When people think about the body systems affected by Ehlers-Danlos Syndrome (EDS), the voice box probably isn’t one of the first things that comes to mind. People with EDS often learn that connective tissue plays a role in far more parts of the body than they initially realized, and yet they may still be surprised […]
Hypermobile Ehlers-Danlos syndrome (hEDS), and the closely related hypermobility spectrum disorders (HSD), are commonly thought of as conditions that primarily affect women. Walk into any EDS support group, online community, or clinic waiting room, and the overwhelming majority of people there will be female. But does that mean men are truly less affected, or does […]
For most of my life, other people told my story. As a teenager, I saw my story appear in newspaper articles, documentaries, and conference presentations, focused on my rare genetic condition, scientific discovery, and perseverance. The stories helped other families find answers and gave people hope, and I remain grateful for the community they created. […]
Have you ever clicked on the webinar section of our Chronic Pain Partners website and looked through the archives of the presentations featured? In 2013, our founder, John Ferman, started this highly popular educational series with a clear mission to provide free access to emerging research interpreted by experienced physicians. Wow, did he succeed! Looking […]
There’s a good chance you’ve heard how important “getting stronger” is for bendy people. And it’s true: bendy people have been shown to generate about 30% less muscular force (i.e. be 30% weaker) at baseline than their non-bendy counterparts. And yet, the bendy body relies even more heavily on muscular support than others, thanks to […]
There is exciting news for the recently reported 17% of hEDS patients and 14.7% of HSD patients who experience polycystic ovary syndrome, now renamed to polyendocrine metabolic ovarian syndrome. On May 12th, 2026, a new article was published in The Lancet announcing the name change from polycystic ovary syndrome (PCOS) to polyendocrine metabolic […]
A recent 2026 study is providing additional clues about the biology of hypermobility spectrum disorder (HSD) and hypermobile Ehlers Danlos Syndrome (hEDS). In this article, we’ll explore what the researchers discovered, why they believe the two conditions may share common biological mechanisms, and what these findings could mean for future research. How the Study Was […]
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In memory of John Ferman, Founder and President of Chronic Pain Partners / EDS Awareness
EDS Physical Therapy Book & Free Webinar: “Living Life to the Fullest with Ehlers-Danlos Syndrome”