Videos
Documentary Films on Ehlers-Danlos Syndrome
Over the last year, the Ehlers-Danlos Syndromes have been increasingly present in media. Several films have depicted different aspects of the lived experience of families with Ehlers-Danlos Syndromes and comorbid conditions around the globe. The following is a dynamic list of documentary films on EDS and its comorbid conditions based on the release date. Ehlers-Danlos […]
We Are Visible Too, Episode 2: Caitlin O’Donnell
We Are Visible (Too) is an ongoing mini-film series portraying people with EDS all across the globe. In this mini-documentary series, we will continue on the We Are Visible – a feature-length film about people with EDS – journey and add a variety of 5 – 10 minute videos of other people across the country […]
Father Raising Awareness with Ryan Challenge and Vascular Ehlers-Danlos Syndrome (VEDS)
By: Hillary Floren Posted: Aug 14, 2018 06:48 AM MDT EL PASO, Texas – Ryan Dolliver is like most 3-year-old boys. He loves to play with his sister, laugh, destroy things and he can be mischievous. Ryan has a great smile, and when he laughs it is infectious. He has no clue he is living with […]
The Directory for EDS Support Groups
Watch the video tour of the EDSawareness.com site in 2012: EDSawareness.com celebrated its 2nd year anniversary in July 2014 by sponsoring a booth at the EDNF Learning Conference in Houston TX. We have come a long way in just two short years! This video shows the launching of EDSawareness.com at the 2012 Cincinnati EDNF Learning Conference! We welcome Comments […]
Discovery Health Channel: Ehlers-Danlos Syndrome
Discovery Health Channel presents an episode about Ehlers-Danlos Syndrome. This TV segment portrays Alberto Friedman’s family of EDSers and describes the challenges they face. It addresses EDS Hypermobility and Vascular types.
Learn more about Ring Splints
The Beautiful Splint Company in York, UK makes medical jewellery for people who need specific support for their joints, for instance due to arthritis. This film follows Emma, an artist who has Ring Splints made for her fingers due to hypermobility caused by Ehlers-Danlos Syndrome, which has also resulted in arthritis in her finger joints. […]
EDS Support Group Directory in Development at www.EDSawareness.com
www.EDSawareness.com launched its new online resource at the EDNF Learning Conference last week in Cincinnati, Ohio. “We had an overwhelming response”, says John Ferman, Founder. “My wife passed away in 2008 – never knowing EDS was the cause of 30 years of chronic pain. This was the same year my daughter was diagnosed with […]
Hypermobility Connective Tissue Disorders
Kristen Means discusses her journey with EDS. 1 in 10 Americans have hypermobility connective tissue disorders, according to EDS expert, Dr. Fraser C. Henderson, Sr. MD. That’s 30 million people – and we don’t know exactly how many are afflicted with EDS. Many of them suffer daily with invisible pain and chronic fatigue. Ehlers-Danlos Syndrome […]
