Managing Symptoms
Understanding the EDS Pain Maze
September is Pain Awareness Month—a time to shine a light on the silent journey of so many chronic pain sufferers. The unwavering type of pain that lasts for longer than six months called “chronic pain” can seem endless when you have Ehlers Danlos syndrome (EDS). It is likely the most common symptom so many of […]
Research Round-Up, volume 2
Welcome back to the Research Round-Up, a summary of EDS news you can use. We’ve got a lot of great research for you this month, so giddy up and git going! Yee-haw! If you have an article you’d like to see in Research Round-Up, submit it to kate@chronicpainpartners.com. Looking for more resources about EDS? Check […]
Top Ten Reasons EDS SUCKS!
The votes are in! One hundred and sixty-seven (167) of you responded to our survey about the things that SUCK about EDS. What made it into the top spot as the worst of all? Where did your dissatisfactions rank? Scroll down to find out! How we tallied the results: Each respondent received the same 19 […]
Research Round-Up, Edition One
Welcome, pardner, to our new feature, Research Round-up! In each issue, we’ll bring you summaries of some of the latest EDS research to hit the medical journals. We’ll usually have five or so articles, but we’ve got a special edition this time—10 articles for your information and enjoyment! Yee-haw! Hitch up your horse, grab a […]
Got the Barometric Blues?
Strategies For Managing the Impact of Changing Weather Patterns Tomorrow’s weather forecast for your joints? Cloudy with a chance of pain. There’s a long-held scientific belief that worsening weather can increase aches in your joints, according to the Cleveland Clinic, especially for conditions like arthritis and fibromyalgia. We don’t really fully understand why, but for […]
Podcasts on Ehlers-Danlos Syndrome
With growing awareness about the Ehlers-Danlos syndromes, varying resources in different types of media developed over the last years. Our Chronic Pain Partners’ Team is collecting their favorite books, podcasts and films on EDS and its comorbid condition in a series of listicles you will find on our website over the next months. We have […]
Books on Ehlers-Danlos Syndrome
With growing awareness about the Ehlers-Danlos syndromes, varying resources in different types of media developed over the last years. Our Chronic Pain Partners’ Team is collecting their favorite books, podcasts and films on EDS and its comorbid condition in a series of listicles you will find on our website over the next months. We are […]
Tethered Cord in EDS: A Patient Guide to Symptoms, Diagnostics, Treatments, and Risks
Understanding Tethered Cord Syndrome and Occult Tethered Cord in Ehlers-Danlos Syndrome (Also see the simplified version of this article) Unravelling the tethered cord has proven to be an elusive topic. Basically, there is not a great deal of credible insight or medical research available on it. To start simply, we begin with basic anatomy and […]
