Local EDS Support Groups

A Local EDS Support Group is a great way to share information and develop “face-to-face” relationships with EDSers having similar experiences.

Watch this free video describing how we can help you start a group and spread local awareness.

2019 Leadership Conference discusses: Setting up and managing Adult and Children EDS Support groups, Facebook for Support Groups, Advocacy and Business considerations.

Please go to the Home Page for our map and list of Local Support Groups.

We can show you:

  • how to join or start your group
  • how to find new members, plan & organize meetings, activities, local awareness, etc.
  • how to create your FREE website pages
    (Simple and user-friendly! If you can use a Word processor, you have the skills already!)

Through local groups and this website community, we will:

  • Provide FREE website pages for your group to post meetings, activities, articles, helpful hints, local resources, etc.
  • Help EDSers locate valuable information, continue to learn, and create resources to share with their EDS peers
  • Enable you to share your experiences and what you’ve learned about managing EDS, and recommend links to your favorite sites, research papers, books, products, articles, etc.
  • Encourage and enable EDSers to inform medical practitioners and the public about EDS
Contact us to join/start a group  or create your webpages:

    Your Name (required)

    Your Email (required)

    Phone

    Location (Major City near you, State)

    Describe your interest in:

    - Joining a group
    - Starting a group
    - Website pages for an existing group

    Get Webinar Announcements And Our FREE Guide

    Support EDS Awareness

    See all upcoming events

    Upcoming and Previous Webinar Speakers

    • webinar-image

      Clair Francomano MD
      “EDS and Hypermobility Spectrum Disorders – Overview of Diagnosis and Management”

      Learn More

    • webinar-image

      Sonny Mullen
      “A Guide to Medical Fundraising”

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    • webinar-image

      Karina Sturm
      New Feature-Length Ehlers-Danlos Documentary
      “We Are Visible”

      Learn More

    • webinar-image

      Podcast Interview with Karina Strum
      ‘We are Visible’ Podcast Interview

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    • webinar-image

      Andrea Julian
      “Starting and Maintaining a Successful Support Group”

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    • webinar-image

      Maria Dastur, M.B.A.
      Organizing and Managing your Facebook and Social Media

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    • webinar-image

      Alan G. Pocinki M.D.
      Sleep Disorders in EDS

      Learn More

    • webinar-image

      Ross A. Hauser, MD
      Consequences and Resolution of Joint Instabilities in H- EDS

      Learn More

    • webinar-image

      Bonnie Nasar RDN
      “Optimizing nutrition to Decrease Brain Fog, Fatigue, & Pain”

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    • webinar-image

      Jeannie Di Bon. MA, PMA-CPT
      “How can Pilates help with my EDS Symptoms”

      Learn More

    • webinar-image

      Petra Klinge MD
      “Managing Life with Neurological Symptoms and EDS”

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    • webinar-image

      Cathy L. Pederson, Ph.D
      “Understanding the Relationship between Chronic Illness and Suicide”

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    • webinar-image

      Patrick Agnew DPM
      “Foot and Ankle Treatments for EDS”

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    • webinar-image

      Susan Tran, PhD
      “Partnering with Families to Improve Functioning in Youth with EDS”

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    • webinar-image

      Paolo A Bolognese, MD
      Chiari I Malformation, EDS, and Craniocervical Instability

      Learn More

    • webinar-image

      Lauren Stiles, JD
      “Understanding the Relationship Between Ehlers-Danlos Syndrome and Postural Orthostatic Tachycardia Syndrome”

      Learn More

    • webinar-image

      Jordan Tishler, MD
      Medical Cannabis – Pain Relief for EDS

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    • webinar-image

      Jeannie Di Bon, MA, PMA-CPT
      “Strengthen and Control Your Hypermobile Core With Pilates”

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    • webinar-image

      John Ferman
      Online EDS Physician CME Education

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    • webinar-image

      Anne Maitland, MD, PhD
      “Mast Cell Activation Disorder”

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    • webinar-image

      Joshua Milner, M.D.
      “Update on Tryptase Research”

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    • webinar-image

      Delia Chiaramonte, MD
      “Practical Stress Management: A Mind-Body Approach”

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    • webinar-image

      Manu Sood, MD
      Katja Kovacic, MD
      “Gastrointestinal Motility Disorders and Cyclic Vomiting”

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    • webinar-image

      Gisela Chelimsky, MD
      “Hypermobile EDS and Gastrointestinal Issues”

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    • webinar-image

      Pradeep Chopra, MD
      “Management of complex pain in children and adults with EDS”

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    • webinar-image

      Pradeep Chopra, MD
      “EDS Pain Management – Connecting the DOTS… part 3”

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    • webinar-image

      Dr. Ajoy Sarkar
      “Ehlers-Danlos Syndrome Hypermobility Type in the UK: Missed or Just Misunderstood?”

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    • webinar-image

      Sara Williams, PhD
      “Biofeedback: Training your Body to Relax”

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    • webinar-image

      Jan Dommerholt, DPT
      “Physical Therapy for EDS – Part 2”
      Why does it hurt all of the time?

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    • webinar-image

      Markus-Frederik Bohn, PHD
      “Tenascin X and Ehlers-Danlos Syndrome”

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    • webinar-image

      Dr. Marco Castori

      “Multidisciplinary Diagnostic and Management Approach to the EDS Patient”

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    • webinar-image

      Professor Claude Hamonet and Dr. Isabelle Brock

      “A French Perspective on Ehlers Danlos”

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    • webinar-image

      Dr. Delia Chiaramonte

      “An Integrative Approach to Pain Management”

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    • webinar-image

      Dan Doherty — YouScript / Genelex Corp.

      “Pharmacogenetic Testing to Assess Altered Drug Metabolism”

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    • webinar-image

      Dr. Alan Pocinki

      “Psychiatric Misdiagnoses in EDS: When is Anxiety not Anxiety?”

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    • webinar-image

      Dr. William Ericson

      “Orthopedic Issues in the EDS Hand, Wrist and Arm”

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    • webinar-image

      Dr. Norman Marcus

      “EDS & Pain”

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    • webinar-image

      Dr. Lawrence Afrin

      “Mast Cell Activation Syndrome”

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    • webinar-image

      Diane O’Leary, PhD

      “All in Your Head”: The Problem of Psychogenic Diagnosis for Ehlers-Danlos Patients

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    • webinar-image

      John Ferman and Deanna Hamm

      “World-Wide EDS Survey Results” by EDS Awareness
      (2544 respondents from 26 countries)

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    • webinar-image

      Sara Williams, PhD

      “Cognitive Behavioral Therapy as a Coping Skill for EDS”

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    • webinar-image

      Dr. Anne Maitland

      “Mast Cell Activation Syndrome in EDS Patients (Part 2)”

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    • webinar-image

      Dr. Neil Schechter

      “Chronic Pain Hypermobile Children”

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    • webinar-image

      Karen Foulks, OTR/CHT
      Jesse Garris, Silver Ring Splint Co.

      “Anatomy and SilverRing™ Splints for Ehlers-Danlos Hands”

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    • webinar-image

      Dr. Holly Gilmer

      “Chiari Malformation in EDS”

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    • webinar-image

      Dr. Blair Grubb

      “Postural Orthostatic Tachycardia Syndrome (POTs)”

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    • webinar-image

      Trish Meegan, DPT, L, ATC

      “Physical Therapy for EDS: Including how your posture and thorax/ribcage affects your PT program”

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    • webinar-image

      Dr. Patrick Agnew

      “Soft Tissue Surgery in Collagen Disease (for EDS Feet & Ankles)”

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    • webinar-image

      Dr. Petra Klinge

      “Tethered Cord Syndrome in Ehlers-Danlos”

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    • webinar-image

      Kelly Clancy, OT

      “New and Emerging Manual Therapy Approaches for EDS”

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    • webinar-image

      Dr. Clive Bridgham

      “Chronic Pain Alternatives – with focus on inflammation and nutrition”

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    • webinar-image

      Kevin Muldowney, MSPT

      “Physical Therapy Protocol for Ehlers-Danlos Syndrome” (using the new EDS Physical Therapy Book)

      Learn More

    • webinar-image

      Dr. Mitzi Murray

      “How, Why and When: Genetic Testing in EDS for the Non-Geneticist”

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    • webinar-image

      Ellen Lenox Smith

      “Living Life Again with Dignity Using Medical Marijuana”

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    • webinar-image

      Dr. Joan Stoler

      “Update on Complications and Rare Forms of EDS”

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    • webinar-image

      Jennifer Ortiz, MPT, WSC

      “Physical Therapy for Sexual Dysfunction in EDS”

      Learn More

    • webinar-image

      John Ferman

      “Support Groups for Ehlers-Danlos Syndrome”

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    • webinar-image

      Dr. John Mitakides

      “Musculoskeletal Headaches in EDS”

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    • webinar-image

      Dr. Patrick Agnew

      “Foot & Ankle Issues with EDS”

      Learn More

    • webinar-image

      Dr. Hal Dietz

      “Connective Tissue Disorder Research”

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    • webinar-image

      Dr. Theoharis Theoharides

      “Mast Cell Disorders”

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    • webinar-image

      Dr. Brad Tinkle

      “Introduction to Ehlers-Danlos Syndrome”

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    • webinar-image

      Dr. Ronald Jaekle

      “Ehlers-Danlos and Pregnancy”

      Learn More

    • webinar-image

      Dr. Manu Sood

      “Gastrointestinal Disorders in EDS”

      Learn More

    • webinar-image

      Dr. Forest Tennant

      “Managing Centralized Intractable Pain in Ehlers-Danlos”

      Learn More

    • webinar-image

      Cynthia Allen, GCFP, STMI

      “The Feldenkrais Method”

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    • webinar-image

      Dr. Mark E. Lavallee

      “Exercise is Medicine”

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    • webinar-image

      John Ferman

      “Support Groups for Ehlers-Danlos Syndrome”

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    • webinar-image

      Dr. Howard R. Epps

      “Orthopaedic Considerations in EDS”

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    • webinar-image

      Jan Dommerholt, DPT

      “Physical Therapy for Ehlers-Danlos, Part 1”

      Learn More

    • webinar-image

      Dr. Henry Burkholder

      “Postural Orthostatic Tachycardia Syndrome (POTs) and EDS”

      Learn More

    • webinar-image

      Dr. Peter Byers

      “Vascular Ehlers-Danlos Syndrome / EDS type IV”

      Learn More

    • webinar-image

      Subinoy Das, MD, FACS, FARS

      “Sinus Care for Ehlers-Danlos Syndrome”

      Learn More

    • webinar-image

      Frank Gargano PT, DPT, OCS, CIDN, MCTA, CWT

      “Dry Needling for EDS Pain Management: Can muscle performance be improved?”

      Learn More

    • webinar-image

      Diana Lebron, MD

      “Headaches and Ehlers-Danlos Syndrome”

      Learn More

    • webinar-image

      Shweta Dhar, MD, MS, FACMG

      “Coordination of Care in Adults with EDS”

      Learn More

    • webinar-image

      Kathleen Kane, ESQ

      “Applying for Disability”

      Learn More

    • webinar-image

      Dr. Richard Barnum
      “EDS and Psychiatric Illness Misdiagnoses”

      Learn More

    • webinar-image

      Dr. Anne Maitland
      “Mast Cell Activation Syndrome” Part 1

      Learn More

    • webinar-image

      Dr. Alan Pocinki
      “Chronic Pain, Poor Sleep, Depression, and Fatigue in EDS”

      Learn More

    • webinar-image

      Dr. Derek Neilson
      “Proving the obvious: Next Steps for the Demystification
      of the Ehlers-Danlos Hypermobility Type”

      Learn More

    • webinar-image

      Dr. Peter Rowe
      “Managing Orthostatic Intolerance in EDS”

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    • webinar-image

      Prof Joel Lamoure, RPh., DD., FASCP
      “Medical Psychiatry in Pain Management”

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    • webinar-image

      Eric Palmer, Orthotist
      “Bracing for EDS”

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    • webinar-image

      Dr. John Mitakides
      “TMJ, Cervical Instability and EDS”

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    • webinar-image

      Dr. Staci Kallish
      “Cardiac Manifestations in EDS”

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    • webinar-image

      “EDS and Pain… Connecting the Dots” Part 2

      Pradeep Chopra, MD

      Learn More

    • webinar-image

      Presenter: Kevin Muldowney, PT Click here for a link to the announcement page Video link is on this page

      Learn More

    • webinar-image

      EDS Pain Management. (Part 1)
      Dr. Pradeep Chopra

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    • webinar-image

      Presenter: Michael, Healy, DPT Click here for a link to the announcement page  Video link is on this page

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    • webinar-image

      Dr. Kenneth Goldschneider
      Pain Management for EDS

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