Archive for the ‘Managing Symptoms’ Category

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New Book “Our Stories of Strength – Living with Ehlers-Danlos Syndrome”

Posted on August 1, 2015

“Our Stories of Strength – Living with Ehlers-Danlos Syndrome”, edited by Kendra Neilsen Myles, is an inspirational collection of stories written by those affected by different types of Ehlers-Danlos Syndromes

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Triathletes Face Ironman Test to Help Boy with Ehlers-Danlos Syndrome

Posted on July 31, 2015

By Neil Metcalfe. Hugo Whatton is a 3-year-old with Vascular type Ehlers-Danlos Syndrome.  His caregivers must be very cautious in handling him and preventing injuries which could be life-threatening.  Kim and Alasdair Hutt of Laurel Avenue, Potters Bar, will tackle a 2.4 mile swim, a 112 mile bike ride and to finish off, they will […]

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Lack of Clinical Understanding about Hypermobility Conditions and Treatment

Posted on July 28, 2015

By Bill Schu. Many doctors do not understand the clinical significance of joint hypermobility.  This has a major impact on accessing appropriate treatments. Mobility is great. Hypermobility? Less great. In the joints, hypermobility leads to musculoskeletal pain – and often times, lots of it. A recent review in the Journal of Pain Research outlined several […]

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Dr. John Mitakides Webinar: “Musculoskeletal Headaches in EDS” – Recording Available

Posted on July 21, 2015

Watch this FREE online learning session!    Dr. John Mitakides presents “Musculoskeletal Headaches in EDS”.   Sponsored by www.bodysupportstore.com    TOPIC: “Musculoskeletal Headaches in EDS”   PRESENTER: Dr. John Mitakides   Click here for the recording of this presentation Click here for the slides used for this presentation About our speaker: Dr. John Mitakides CLICK HERE for more […]

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Disconnnected… Ehlers-Danlos syndrome: Some symptoms point to a need for greater awareness among dental professionals

Posted on July 17, 2015

By Judith M. Stein, RDH. Ehlers-Danlos syndrome (EDS) was not only “under my knowledge radar,” it wasn’t even on my screen of awareness. What launched this syndrome into my awareness was a community tragedy where

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Trevor will be Riding 100 miles to Raise Cash for Hypermobility Association

Posted on July 1, 2015

Trevor Sleeman will be riding his bicycle to raise awareness and funds for the Hypermobility Association. [Halstead Gazette] Trevor will take part in a 100-mile bike ride to raise money for people with a painful medical condition after his wife was diagnosed with it. Trevor Sleeman (pictured), 49, will take part in the Prudential 100 bike […]

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