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Hypermobility Spectrum Disorder

Illustration of a young Black woman coughing during a meal while holding her throat, with a bowl of soup containing a spoon and a glass of water in front of her, representing swallowing difficulties (dysphagia) associated with Ehlers-Danlos syndrome (EDS) and hypermobility spectrum disorders (HSD).

Why Is Swallowing So Hard? Dysphagia in EDS and HSD 

August 20, 2026

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Minimalist illustration of a woman surrounded by symbols of love, happiness, anger, sadness, and other emotions, while a band of fog obscures her eyes, representing emotional numbness and difficulty accessing feelings.

Understanding Emotional Numbness in Ehlers-Danlos Syndrome

August 12, 2026

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A minimalist watercolor-style illustration of a young Asian woman performing a dumbbell chest press while lying on an exercise mat. She wears a light zebra-print athletic top, gray shorts, white compression socks, and white trainers. Beige kinesiology tape is applied to her upper arm. The bright, neutral-toned home workout space includes a potted plant and simple shelving, conveying a calm, low-impact strength training environment.

Strength Training with Hypermobility: The Goldilocks Principle

August 8, 2026

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Illustration of a uterus and ovaries overlaid on a grid of white tiles, symbolizing the shift from viewing PCOS as an ovarian condition alone to recognizing PMOS as a complex multisystem endocrine and metabolic disorder.

A Name Long Overdue: PCOS Becomes PMOS, and What That Means for the hEDS Community

August 5, 2026

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Overhead view of multiple blister packs containing different prescription medications and tablets beside medication bottles and a tissue on a white surface, representing the complexity and emotional burden of starting and managing medications with chronic illness.

The Fear No One Talks About: Starting a New Medication When Chronically Ill

August 3, 2026

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Abstract scientific illustration of interconnected protein-like molecular networks in shades of navy blue, light blue, gray, black, and white on a clean white background. Glossy circular nodes are connected by thin lines to form two minimalist network clusters, with small scattered dots suggesting additional molecules. The image is decorative and represents protein interaction networks and proteomics rather than specific biological structures.

New Study Finds Shared Protein Signatures in hEDS and HSD

July 8, 2026

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Things People Have Done That Made Me Feel More Comfortable as Someone with Chronic Illness

July 2, 2026

Sitting in the Hard Stuff There are moments with chronic illness that are just genuinely horrible all the way around. No silver lining, no lesson, just a terrible day in a body that is kicking you when you’re down. Having people who are willing to sit in that with me when I have nothing to […]

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Soft sketch-style illustration of an upright MRI machine with a dark-haired patient seated inside wearing MRI-safe clothing. A female MRI technologist stands beside the machine, speaking with the patient and adjusting the controls. The image depicts a weight-bearing upright MRI in a calm clinical setting.

Seeing the Spine in Motion: Exploring the Potential Benefits of Upright MRI in EDS

June 11, 2026

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EDS Awareness is the primary initiative of Chronic Pain Partners, a patient-led nonprofit and a trusted voice in the Ehlers-Danlos community since 2011. Our mission is not only to raise awareness of Ehlers-Danlos Syndromes, but to support patients in navigating life after diagnosis.

Through our articles, newsletters, multimedia, and community storytelling, we help patients, medical professionals, and the broader community better understand EDS and its wide variety of comorbid conditions. By translating emerging research and connecting patients with experts, we turn complex medical information into clear, actionable knowledge that patients can use. We also offer practical guidance for everyday life with EDS, from addressing medical trauma to identifying the best supportive tools.

At EDS Awareness, our goal is to ensure every patient has the support and resources they deserve to live a full and active life with EDS.

Chronic Pain Partners, a US-based non-profit 501(c)(3) organization.

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