Surgery

A set of different surgical tools

Outcomes of Craniocervical Instability Fusion Surgery in People with EDS

A recent study by Henderson et al. found significant benefits for EDS patients with severe craniocervical instability who underwent occipito-cervical fusion surgery.  Craniocervical instability is one of the most severe neurological complications of the Ehlers-Danlos syndromes, causing many affected individuals symptoms such as headaches, severe full body pain, dizziness, nausea, blurred vision, paresthesia, fatigue, weakness, […]

lumbar spine

Tethered Cord in EDS: A Patient Guide to Symptoms, Diagnostics, Treatments, and Risks

Understanding Tethered Cord Syndrome and Occult Tethered Cord in Ehlers-Danlos Syndrome (Also see the simplified version of this article) Unravelling the tethered cord has proven to be an elusive topic. Basically, there is not a great deal of credible insight or medical research available on it. To start simply, we begin with basic anatomy and […]

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A plastic model of the lumbar spine

Unraveling Tethered Cord for EDS Patients (simplified version)

Special thanks to EDS medical provider Pradeep Chopra, MD for reviewing this article curated by our media team. Learn more from his expertise in his video webinar on EDS Pain Management (discussion on tethered cord at the 1:13 mark).   Intro: Hope for Tethered Cord Syndrome Patients Tethered Cord Syndrome (TCS) is a common condition found […]

Free Webinar – “Chiari Malformation in EDS” – Recording Available

Watch the recording of this free webinar. Sponsored by www.bodysupportstore.com     TOPIC: “Chiari Malformation in EDS” PRESENTER: Dr. Holly Gilmer   Click IMAGE for a link to the recording Click here for a link to the presenter’s slides     INVITE YOUR FRIENDS: Spread the knowledge!  Please post this announcement on Facebook, and forward this invitation to others who […]