Archive for the ‘Surgery’ Category

Posted on March 1, 2016
Watch the recording of this free webinar. Sponsored by www.bodysupportstore.com TOPIC: “Chiari Malformation in EDS” PRESENTER: Dr. Holly Gilmer Click IMAGE for a link to the recording Click here for a link to the presenter’s slides INVITE YOUR FRIENDS: Spread the knowledge! Please post this announcement on Facebook, and forward this invitation to others who […]

Posted on July 7, 2015
Watch this FREE learning session! Dr. Patrick Agnew presents “Foot & Ankle Issues in EDS”. Click here for the video replay.

Posted on December 30, 2014
Watch this video! Elisha Morgan is recovering from a controversial foot amputation — with no regrets. Whether you agree with her decision or not, there is no doubt of the bravery she’s displayed in this situation — we salute her strong spirit!

Posted on December 28, 2014
After a controversial surgery, Elisha Morgan feels she made the right decision to amputate her foot. She is hopeful. Her surgeon and her family have been supportive. (Part 2 of 3)

Posted on December 26, 2014
Elisha Morgan’s 8-year struggle with severe foot pain lead to an Ehlers-Danlos diagnosis that changed her life. Her doctors exhausted all treatment options. Now, she considers making a very difficult decision … (Part 1 of 3)

Posted on March 16, 2014
This is a remarkable story about Kelly Koep, a young lady with Ehlers-Danlos Syndrome, who is beating the odds. Her surgeon, Dr. Fraser Henderson, is still taken aback at the extent of the disabling conditions he sees in more than 500 EDS patients. EDS expert, Dr. Clair Francomano, says, “There’s a lack of knowledge in the medical community about […]