Surgery
Outcomes of Craniocervical Instability Fusion Surgery in People with EDS
A recent study by Henderson et al. found significant benefits for EDS patients with severe craniocervical instability who underwent occipito-cervical fusion surgery. Craniocervical instability is one of the most severe neurological complications of the Ehlers-Danlos syndromes, causing many affected individuals symptoms such as headaches, severe full body pain, dizziness, nausea, blurred vision, paresthesia, fatigue, weakness, […]
Tethered Cord in EDS: A Patient Guide to Symptoms, Diagnostics, Treatments, and Risks
Understanding Tethered Cord Syndrome and Occult Tethered Cord in Ehlers-Danlos Syndrome (Also see the simplified version of this article) Unravelling the tethered cord has proven to be an elusive topic. Basically, there is not a great deal of credible insight or medical research available on it. To start simply, we begin with basic anatomy and […]
Unraveling Tethered Cord for EDS Patients (simplified version)
Special thanks to EDS medical provider Pradeep Chopra, MD for reviewing this article curated by our media team. Learn more from his expertise in his video webinar on EDS Pain Management (discussion on tethered cord at the 1:13 mark). Intro: Hope for Tethered Cord Syndrome Patients Tethered Cord Syndrome (TCS) is a common condition found […]
Free Webinar – “Chiari Malformation in EDS” – Recording Available
Watch the recording of this free webinar. Sponsored by www.bodysupportstore.com TOPIC: “Chiari Malformation in EDS” PRESENTER: Dr. Holly Gilmer Click IMAGE for a link to the recording Click here for a link to the presenter’s slides INVITE YOUR FRIENDS: Spread the knowledge! Please post this announcement on Facebook, and forward this invitation to others who […]
Dr. Patrick Agnew presents “Foot & Ankle Issues with EDS” – Recording Available
Watch this FREE learning session! Dr. Patrick Agnew presents “Foot & Ankle Issues in EDS”. Click here for the video replay.
Elisha Doesn’t Regret Decision to Amputate for Ehlers Danlos Pain Relief: Watch VIDEO STORY
Watch this video! Elisha Morgan is recovering from a controversial foot amputation — with no regrets. Whether you agree with her decision or not, there is no doubt of the bravery she’s displayed in this situation — we salute her strong spirit!
Foot Amputation Offers Relief and Hope for Ehlers Danlos Syndrome Sufferer
After a controversial surgery, Elisha Morgan feels she made the right decision to amputate her foot. She is hopeful. Her surgeon and her family have been supportive. (Part 2 of 3)
Chronic Pain from Ehlers-Danlos Syndrome Leads to a Drastic Decision
Elisha Morgan’s 8-year struggle with severe foot pain lead to an Ehlers-Danlos diagnosis that changed her life. Her doctors exhausted all treatment options. Now, she considers making a very difficult decision … (Part 1 of 3)
