Educational Programs and Newsletter
by EDSawareness.com / ChronicPainPartners.com Staff
EDS Educational Programs
Our goal is to Connect, Support and Educate patients, caregivers and professionals on EDS/HSD through our webinars, continuing education courses and other activities.
We offer
free webinars to educate our members and the EDS Community.
Anyone (worldwide) can attend online programs 7/24 and if needed can receive CME, CEU and CNE.
We are also offering new
Patient Guides on all topics around EDS, such as
CCI, applying for disability and more.
EDS Awareness newsletters:
Our monthly newsletter, the Chronic Pain Partners Post, features articles by and for the EDS community and highlights people with EDS and other chronic illnesses and disabilities every month.
Just click on the months below for previous newsletters:
2021
Holiday Special with Gift Ideas and Book and Documentary recommendations for the holidays.
2022
Review of Jeannie Di Bon’s Zebra Club App
Interview with Dr. Linda Bluestein about her new educational program for people with EDS
EDS & Caregiving: an
interview with two caregivers
Expert
opinion: Dr. Chopra on psych issues & EDS
Interview with Dr. Chopra re. the psychological and psychiatric aspects of the Ehlers-Danlos syndromes
EDS is not all in the head – an
essay by John Ferman
Brianna Cardenas, PA-C, ATC, on
challenges as a queer woman of color with EDS
Interview with the Norris Lab on finding the cause(s) of hEDS
Interview with Donna Sullivan, TCAPP, about wrongful child abuse allegations and medically complex children
Kaleena Deshawn on challenges as a person of color with EDS, Fibromyalgia and ME/CFS
Jules Machias about their EDS journey and new middle-grade book “Fight + Flight”
Archer Young about navigating health care as a trans man with EDS, transitioning, and studying with EDS
Ehlers-Danlos Syndromes, gynecological complications &
sexual health
Suicide Prevention Month Special:
April Torres on her EDS journey, the mental toll it took on her, and her book & Suicide
Prevention Month Q&A with Dr. Delaney and PA Sarah Cook about coping strategies and how to support people with chronic illnesses
Book
Review: “Fight + Flight”, the new middle-grade book featuring a character with EDS
Author Christie Cox about her
new EDS book ‘Holding It All Together When You’re Hypermobile’
The Sextacular EDS Zebra Group: An
interview with admin Mary Cordaro
EDS & Caregiving: An
interview with Alice Agyemang, professional full-time caregiver
Book
Review: Holding It All Together When You Are Hypermobile
Chronic Illness Advocate Brianne Benness about her EDS journey and #NEISVoid
Holiday Special:
The 12 Gifts of Blissmas: This Holiday Season’s Gift Guide for the EDS Warrior & EDS Holiday Hacks: Twelve Tips for Setting Yourself Up for Success by Realigning Your Expectations
2023
Mitch Martow on his EDS journey and the documentary Bend or Break
Author Jessica MacLean on how writing saved her and what she learned from her ancestors
December 2023