Archive for the ‘Awareness’ Category

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An EDS Research Database for our German Doctors

Posted on October 18, 2018

To: John Ferman – President  Chronic Pain Partners Thank you for the amazing work you are doing. It is exciting to hear about the great success of the EDS Physician CME program and the planned CEU program! We are creating a research database for our German doctors with publications and information on Ehlers-Danlos syndromes. Only […]

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EDS Awareness was a Sponsor at the 2018 EDS Learning Conference

Posted on August 8, 2018

EDS Awareness was a Sponsor at EDS Learning Conference for the 7th time. EDS Awareness a.k.a. Chronic Pain Partners non-profit 501(c)(3) was a sponsor and received an overwhelming response to our support groups, monthly webinars and our new EDS Physician CME Education program. There have been over 900 participants registered to take courses over the […]

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Active Teen Gets Her Life Back after Discovering POTS

Posted on July 11, 2018

July 9, 2018 by Heather Bauders, Senior Public Relations Specialist     Every day of restored health is a blessing for Christina Corturillo and her mom, Kathy. What do you do when you go from being an active kid to unable to walk? What do you do when doctors think the problem is mental, but you know […]

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Doctor said it was all in her head, but it was ‘the most common condition’

Posted on June 24, 2018

POSTED 5:48 AM, JUNE 26, 2018, BY CNN WIRE, UPDATED AT 07:37AM, JUNE 26, 2018 Fox 59 File photo Super Bowl MVP Nick Foles is ecstatic about leading the Philadelphia Eagles to victory, but that’s not the triumph he celebrates daily. He gives that medal to his wife, Tori Foles, for what he calls her “amazing strength” […]

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How to Improve Your Quality of Life While Living with Ehlers-Danlos

Posted on June 20, 2018

Posted on June 20, 2018 in Alternative Pain Therapy, Diseases & Conditions,   By Ellen Lenox Smith. Ehlers-Danlos Syndrome (EDS) is a condition that causes one to be born with defective connective tissue, the “glue” which holds the body together. Currently, there is still no permanent cure to this problem, so living life with this condition means learning to […]

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Woman called “Faker” Because of POTS an Invisible Condition

Posted on June 14, 2018

Many “invisible” illnesses like POTS and Ehlers-Danlos Syndromes (EDS) are not understood by the medical community and the general public. Learn more and spread awareness in your community. Standing up for POTS EDS Awareness Education

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CSF – Unite@thehill – June 23-25, 2018

Posted on April 11, 2018

For the past few years, CSF has stormed Capitol Hill with you to make a difference for people living with Chiari malformation, syringomyelia, Ehlers-Danlos syndrome and many other related disorders… and it seems like Congress is really listening. I n February 2015, Congress voted to increase the NIH budget by $31.3 billion to support more biomedical research. In 2016, […]

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