EDS Awareness was a sponsor for the POTS 5K, at Wittenberg University in Springfield, Ohio on October 7, 1017 Click here for more information
We participated again in a very successful EDS Learning Conference. Here are connections to activities at the EDS Society Conference in Las Vegas 9-6 thru 9-8 New EDS Physician CME Educational Online Program announced Click here for Jon Rodis EDS Society Conference Summary Click here for Dr. Chopra’s presentation […]
Hypermobile EDS is difficult to diagnose because it devastates the whole body and causes numerous symptoms. By Mary Vuong Sarrah Hannon once led an active life of triathlons, marathons and rock climbing. Now she refrains from lifting a gallon of milk. Hannon, 30, lives with Ehlers-Danlos Syndrome (EDS), a group of genetic connective tissue disorders. The […]
EDS Awareness 5K hosted by Dayton Zebras
ALL PROCEEDS WERE FOR CHRONIC PAIN PARTNERS, EDS AWARENESS
By Catherine Roberts You likely haven’t given too much thought to your skin, joints, and blood vessels lately—unless you’ve suffered an wound that required stitches or a joint injury that put you off your game for a few weeks. However, for patients with Ehlers-Danlos syndromes, a set of inherited disorders that strike these connective tissues, […]
By John Lynds, Times Staff: Just before she turned 3-years-old, Beth Villani’s daughter, Hannah was diagnosed with Ehlers-Danlos Syndrome. “Our daughter was diagnosed in January at just age 2 years and 10 months,” said Villani. “I will be honest and say that hearing that news broke my heart. When the doctor told me we would […]
By MICHAEL LYON • MAY 15, 2017 The Woodmen Tower in Omaha, NE, was lit up in black and white “zebra” stripes Monday night, 5/15 for Ehlers-Danlos Syndrome (EDS) Awareness Month, which takes place in May. This iheart radio show in Omaha, NE featured Wendy Hamilton, Colleen McCoy, leaders if the Nebraska […]
Have you ever looked at logos and considered that they may have a hidden meaning or inspiration behind their creation? Our favorite brands may hold hidden messages behind the fancy artwork. To uncover the meaning embedded in the EDS Awareness logo, we asked John Ferman, the co-founder of EDS Awareness (Chronic Pain Partners). Introduction John […]
Ehlers-Danlos Syndrome May Increase Susceptibility to Infections
EDS, POTS and MCAS Linked by One Gene Mutation
Popular People With Ehlers-Danlos Syndrome
In memory of John Ferman, Founder and President of Chronic Pain Partners / EDS Awareness
EDS Physical Therapy Book & Free Webinar: “Living Life to the Fullest with Ehlers-Danlos Syndrome”