Archive for the ‘Awareness’ Category
Posted on July 31, 2015
By Neil Metcalfe. Hugo Whatton is a 3-year-old with Vascular type Ehlers-Danlos Syndrome. His caregivers must be very cautious in handling him and preventing injuries which could be life-threatening. Kim and Alasdair Hutt of Laurel Avenue, Potters Bar, will tackle a 2.4 mile swim, a 112 mile bike ride and to finish off, they will […]
Posted on July 29, 2015
By Jonathan Rodis.
Edited by Sue Hagen.
Being your own advocate not only improves the quality of your care in the future, but also provides your local caregivers, physicians and hospital staff a better understanding.
Posted on July 28, 2015
By Bill Schu. Many doctors do not understand the clinical significance of joint hypermobility. This has a major impact on accessing appropriate treatments. Mobility is great. Hypermobility? Less great. In the joints, hypermobility leads to musculoskeletal pain – and often times, lots of it. A recent review in the Journal of Pain Research outlined several […]
Posted on July 19, 2015
Lightheadedness and/or fainting spells upon standing are a common symptom of POTS. Not enough blood returns to the heart and brain upon standing, which causes a rapid increase in heart rate called tachycardia. Other symptoms may include chronic fatigue, “brain fog,” and pain
Posted on July 4, 2015
9-year-old Shea has discovered that swimming reduces his EDS pain. Aquatic activity is one of the best exercises for those with Ehlers-Danlos Syndrome. Shea Sargent is only 9-years old, but he’s
Posted on July 1, 2015
Trevor Sleeman will be riding his bicycle to raise awareness and funds for the Hypermobility Association. [Halstead Gazette] Trevor will take part in a 100-mile bike ride to raise money for people with a painful medical condition after his wife was diagnosed with it. Trevor Sleeman (pictured), 49, will take part in the Prudential 100 bike […]
Posted on July 1, 2015
Natasha is struggling with walking and needs funding for a wheelchair to cope with her Ehlers-Danlos Syndrome. She helps raise awareness by working for EDS Support UK. Published by: Stephanie Price A MELIDEN woman who suffers with a rare condition wants to raise awareness as well as raise money to fund an electric wheel chair. Natasha Evans, […]
Posted on June 22, 2015
Watch this TV news video about Enedina Stanger’s journey to Ehlers-Danlos diagnosis after the birth of her second child. (KUTV) Michael and Enedina Stanger’s love story started shortly after she graduated high school. The two eventually got married and they had 2 kids. After the birth of their second daughter, Enedina’s health started to deteriorate. […]
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