Archive for the ‘Awareness’ Category
Posted on July 4, 2016
By Richard Salit, Journal Staff Writer. Ellen Lenox Smith’s recurring injuries and ailments were as baffling as they were disabling. Some doctors thought they might even be psychological. Why was she always in such pain? Why did she have difficulty swallowing? Why did she keep tearing cartilage and ligaments in her knees and shoulders? And […]
Posted on June 11, 2016
By Michael D. Pitman Staff Writer Elizabeth Schulze worked for years to be able to garner the strength and stamina to walk across the stage and receive her high school diploma. While the act is easy for most high school seniors, it was not for Schulze. Amy Schulze said her daughter, who plans to attend […]
Posted on June 7, 2016
Watch the recording of this free webinar. Sponsored by www.bodysupportstore.com TOPIC: “All in Your Head”: The Problem of Psychogenic Diagnosis for Ehlers-Danlos Patients PRESENTER: Diane O’Leary, PhD Dr. O’Leary is currently an Associate Adjunct Professor in philosophy at University of Maryland University College Click IMAGE for the recording of this presentation. Click here for the […]
Posted on May 1, 2016
Available now to print through Vistaprint! This new EDS brochure is designed for general awareness of EDS. It’s suitable for doctors, teachers, and relatives who just don’t “get it”.
Posted on April 21, 2016
This website and its free programs are dedicated to the memory of Carol and thousands like her – who suffer from undiagnosed Ehlers-Danlos… We were married for 41 years. You’d think that after all of that time you would know everything there was to know about a person. – I knew Carol was a […]
Posted on April 10, 2016
Colorado EDS Awareness Month Proclamation. Justin and Nancy, leaders of the Denver EDS Support Group, received their Proclamation. There is still time to get your Ehlers-Danlos Awareness Month Proclamation request sent to your state or local officials. . . Proclamation sample. http://www.ehlersdanlosnetwork.org/May.html . . Proclamation Contact information Click here for a spreadsheet with contact information […]
Posted on April 10, 2016
Alaska Ehlers-Danlos Syndrome Awareness Month Coloring Competition. Start Date: May 1, 2016 at 12:00 am End Date: May 31, 2016 at 11:59 pm Rules: Attached you will find a picture of a zebra bust that was designed and drawn by the artist Katie Zamudio, Doodlebug Coloring Books. Starting May 1, 2016 at 12:00 am […]
Posted on February 22, 2016
“Issues with my Tissues” follows the epic emotional journey of Lara Bloom, and Ehlers-Danlos Syndrome. We appreciate your Facebook Shares. Likes and comments
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