Archive for the ‘Pain Management’ Category

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Discovering You Have a Chronic Health Condition Can Be Scary!

Posted on June 11, 2013

 It can be scary finding out that you have a major chronic disorder. You no longer have to “feel like a crazy person who is in pain”! Rebecca Allen Writer, photographer, reluctant commuter. Post originally on the Huffington Post Blog. “Hypermobility Syndrome, also known as Ehlers Danlos Syndrome, is a connective tissue disorder characterised by highly […]

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Attention Doctors: An EDS Patient’s Bill of Rights

Posted on June 6, 2013

Many EDS patients are struggling to get their doctors to understand their condition.  This “Bill of Rights” is a tool that may help EDSers communicate with doctors. By     an_angel_with_wings “The purpose of this Bill of Rights is not to be combative or argumentative. I have experienced all of these things during the time that my […]

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Proper Brace or Splint Usage Can Protect Joints

Posted on June 2, 2013

Blogger “purlbeadsjo“ presents an interesting discussion, with illustrations of various braces and splints she uses for her body support. “I am one of those EDSers who has a brace for almost every body part! (I’m missing a few) The 1st question that most bendie’s will have is how on earth did I get them all off […]

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Hypnotherapy May Help With Joint Pain, Sleep

Posted on May 29, 2013

Angela Woods is looking for different methods to relieve pain and improve sleep.   By Shawn Conner, Vancouver Sun Photograph by: Ward Perrin Ward Perrin , Vancouver Sun “Over the years, Angela Woods has tried “just about everything” to manage the pain caused by Ehlers-Danlos syndrome. The retired commercial radio inspector has tried physiotherapy, massage […]

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EDSers Need to Speak Up to Doctors

Posted on May 8, 2013

Many Patients with EDS are struggling with finding medical practitioners who will take the time to understand their condition.  This article urges you to be assertive and be an advocate for yourself. USA Weekend article: Illustrations – Luis Alvarez/Getty Images Written by Cheryl Alkon “About 100,000 people die each year due to medical errors, largely from misdiagnoses, […]

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Bowen Technique for Ehlers-Danlos Syndrome

Posted on April 20, 2013

The following describes a Holistic Therapy technique used to provide some relief for those of us with Ehlers-Danlos Syndrome. Bowen for Ehlers-Danlos Syndrome Isobel Knight MSc Dip BTAA The Bowen Technique is a gentle form of holistic therapy that was founded in Australia by the late Tom Bowen in the 1960s. Tom, who was a […]

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A Dog with Ehlers-Danlos Syndrome?

Posted on January 13, 2013

This is an incredible story of a Dog with Ehlers-danlos Syndrome? The dog was diagnosed with EDS by Dr. Marianne E. Bailey who is a veterinarian at South Arundel Veterinary Hospital in Edgewater, MD. “My veterinarian says he thinks my dog may have Ehler Danlos Syndrome. She has really stretchy skin and, when she gets […]

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Hamilton woman seeks Treatment in the US for a Painful Condition

Posted on January 2, 2013

  Brittinay is another Canadian who is not getting the treatment she needs for her Ehlers-Danlos Syndrome disorder.  She is seeking more treatment in the US. “Brittany Crichton looks battered. Bruises dot the 23-year-old Hamilton woman’s body. She has a pronounced limp. Her shoulders dislocate so often that she puts them back in herself. Clumps […]

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