Archive for the ‘Pain Management’ Category

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Listen to Radio Talk Show on “EDS Pain Management”

Posted on September 14, 2013

EDS Awareness was invited to participate in Radio talk show about EDS Pain Management. It aired on Monday night, 7/22/2013. (Click on the title above to listen to a replay of the interview.)  You will also learn about the EDS Awareness Support Group program. Click here  to listen to the radio show (after commercial). Enjoy the program. We appreciate your Likes […]

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Watch this Video on Pain Management for Ehlers-Danlos Syndrome (EDS)

Posted on August 24, 2013

Watch this MUST-SEE video presentation from the Cincinnati Children’s Hospital discussing chronic pain management for Ehlers-Danlos Syndrome. This recent “online Q & A” event was held Tuesday, 8/20/13. Their primary focus is pediatrics, but the information will be helpful to all patients. Click here to start the video program About This Session Cincinnati Children’s Hospital Medical Center […]

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Cincinnati Children’s Hospital Hosts Ehlers-Danlos Pain Management Q & A

Posted on August 16, 2013

Cincinnati Children’s Hospital has helped patients like Hallie to reduce the pain associated with Ehlers-Danlos Syndrome. The hospital is hosting a live, online Q&A session on pain management on August 20 from 7-8 pm EST. By:Kenneth Goldschneider, MD, FAAP “You might have seen Hallie’s edition of Tell Me a Story. Her journey with pain as a patient […]

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Transportation Can Present Obstacles for the Disabled

Posted on July 22, 2013

Transportation is difficult for the disabled in all countries.  Disabled people should be given more of a right to the roads than they are. Written by ADAM LUKE Cambridge News.co.uk Picture by Warren Gunn “Daredevil Ian Broughall made national headlines last week after police stopped him as he drove his 9mph disability vehicle along the busy […]

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The Library Enables EDSers with Books on CD

Posted on July 20, 2013

At this UK library there was no judgment …. I was always welcome. “The Library Campaign has accused the government of hiding the exact impact of cuts that could cause the closure of a further 400 UK libraries by 2016. As a long-term supporter of the campaign to keep libraries open, I’ve signed petitions and shared articles promoting […]

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Lauren describes her Ehlers-Danlos symptoms

Posted on June 27, 2013

Type 3 Ehlers Danlos Syndrome Written By:  Lcervetto Hi I’m Lauren I’m not looking for sympathy just understanding. I was diagnosed with EDS at age 15. I would always get hurt really easily and would always complain about my joints hurting. I enjoyed running and that kept me in pretty good shape but at age […]

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EDSer fights for patient advocacy in Australia

Posted on June 25, 2013

Rhiannen shares her story about Ehlers-Danlos Syndrome diagnosis and her journey to evaluate her Marfan-like physical characteristics. She started a new organisation “Rare Voices Australia” and acts as a patient advocate for Australians with rare diseases and disorders. by marfmom  |   “I’m on vacation at the beach(!), so while I’m lazing about my days getting a […]

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Ehlers-Danlos & the “Spoon Theory” get attention on BBC News

Posted on June 21, 2013

Many EDSers use the “Spoon Theory” to explain their fatigue and limitations due to the acute-chronic pain cycle.  BBC  News presents a series on “insights into disabled life” which shares the “Spoon Theory” with the public audience.  We hope this will increase awareness & understanding of  the compromises we EDSers must make to manage Ehlers-Danlos […]

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