Archive for the ‘Pain Management’ Category

Learning to Live with Ehlers-Danlos

Posted on November 25, 2012

This young lady was diagnosed in 2009 and is sorting out what is important in her life.  She has some good ideas for productive and positive activities to do when EDS has given you some extra “down time”. “It has been a while, and things are not looking good. I have been bedridden for over five […]

Read More

Talking to Someone with a Chronic Illness

Posted on October 15, 2012

  Editor’s note: Lisa Copen is the founder of Invisible Illness Awareness Week. She has lived with rheumatoid arthritis for nearly 20 years. She spends her time encouraging others who live with chronic illness or pain through her organization, Rest Ministries. (CNN) — When people we care about are in pain, we want to offer […]

Read More

Pain & Managing Pain from an EDS Patient’s View

Posted on October 10, 2012

This is a comprehensive review of Ehlers-Danlos Syndrome, focusing on pain management. Mark Martino of EDNF.org,  describes his personal experiences and addresses techniques to reduce pain. He proposes explanations on why EDSers suffer “acute chronic pain”. The article references many useful medical papers on EDS pain and physical therapy. It includes a great outline of Dr. Clair […]

Read More

Practical Parenting Tips for those with Physical Limitations

Posted on September 20, 2012

by Jennie Macdonald  As someone who suffers from two chronic illnesses (Ehlers-Danlos Syndrome and Postural Orthostatic Tachycardia Syndrome) that include fatigue and joint pain as my two major limitations, I understood the extreme need to be efficient with my time and energy in my early years of parenting. For me, a main priority was to […]

Read More

My Friends and Family Dealing with EDS

Posted on August 1, 2012

jmurphx has EDS and describes, through her text and music, what it is like for her and her family to deal with this disorder. We hear about her many friends and family with EDS.  She is a brave lady who keeps a positive attitude while helping herself and others manage Ehlers-Danlos Syndrome. Check out jmurphx’s […]

Read More

Everyday EDS

Posted on May 30, 2012

Paula has EDS and describes, in her own words, what it is like to deal with this disorder. She is a brave lady who keeps a positive attitude while managing Ehlers-Danlos Syndrome. Check out EDS – Every Day Syndrome – by Paula Dixon Click here to read more about Paula.

Read More

Get Webinar Announcements And Our FREE Guide

Support EDS Awareness

See all upcoming events

Current Poll

How long until you received a proper diagnosis for EDS?

View Results

Loading ... Loading ...