Archive for the ‘Pain Management’ Category
Posted on November 25, 2012
This young lady was diagnosed in 2009 and is sorting out what is important in her life. She has some good ideas for productive and positive activities to do when EDS has given you some extra “down time”. “It has been a while, and things are not looking good. I have been bedridden for over five […]
Posted on October 15, 2012
Editor’s note: Lisa Copen is the founder of Invisible Illness Awareness Week. She has lived with rheumatoid arthritis for nearly 20 years. She spends her time encouraging others who live with chronic illness or pain through her organization, Rest Ministries. (CNN) — When people we care about are in pain, we want to offer […]
Posted on October 10, 2012
This is a comprehensive review of Ehlers-Danlos Syndrome, focusing on pain management. Mark Martino of EDNF.org, describes his personal experiences and addresses techniques to reduce pain. He proposes explanations on why EDSers suffer “acute chronic pain”. The article references many useful medical papers on EDS pain and physical therapy. It includes a great outline of Dr. Clair […]
Posted on September 20, 2012
by Jennie Macdonald As someone who suffers from two chronic illnesses (Ehlers-Danlos Syndrome and Postural Orthostatic Tachycardia Syndrome) that include fatigue and joint pain as my two major limitations, I understood the extreme need to be efficient with my time and energy in my early years of parenting. For me, a main priority was to […]
Posted on September 1, 2012
A heartfelt story of EDS describing how Mimi Newman is dealing with this challenging disorder.
Posted on August 1, 2012
jmurphx has EDS and describes, through her text and music, what it is like for her and her family to deal with this disorder. We hear about her many friends and family with EDS. She is a brave lady who keeps a positive attitude while helping herself and others manage Ehlers-Danlos Syndrome. Check out jmurphx’s […]
Posted on May 30, 2012
Paula has EDS and describes, in her own words, what it is like to deal with this disorder. She is a brave lady who keeps a positive attitude while managing Ehlers-Danlos Syndrome. Check out EDS – Every Day Syndrome – by Paula Dixon Click here to read more about Paula.