Archive for the ‘Managing Ehlers-Danlos’ Category

blog-post-thumbnail
Educational Advocacy and Accommodations for Ehlers Danlos Students

Posted on December 23, 2014

Students with medical conditions, such as Ehlers-Danlos Syndrome (EDS), should have equal educational opportunities in all countries. Unfortunately, that isn’t the reality – according to Amy King, an EDS student and advocate for adult education in the UK. Many adults living with Ehlers Danlos Syndrome (EDS) are highly intelligent, motivated and hard-working individuals looking for the opportunity to learn and contribute to their […]

Read More

blog-post-thumbnail
8 Year Old Forest Ranger with Ehlers Danlos Syndrome on TV

Posted on December 15, 2014

Watch this video about a boy with Ehlers Danlos Syndrome whose dream came true! “Eight-year-old Gabriel was officially named an honorary ranger at Yosemite National Park. Gabriel Lavan-Ying, from Gainesville, Florida, has Ehlers-Danlos syndrome, a debilitating and incurable disorder affecting that causes overly flexible joints and effects the skin and blood vessels. But when the Make-A-Wish Foundation […]

Read More

blog-post-thumbnail
Physical Therapy Webinar: “Dry Needling for Ehlers-Danlos Pain”

Posted on November 19, 2014

  Watch this FREE educational video presentation!    TOPIC:  “Dry Needling for EDS Pain Management: Can muscle performance be improved?”   PRESENTER:   Frank Gargano PT, DPT, OCS, CIDN, MCTA, CWT   Sponsored by www.bodysupportstore.com      Click here for the video replay!   Links to resources mentioned in the video presentation: Dry needling therapy can decrease pain, click here. Dry […]

Read More

blog-post-thumbnail
Cleveland Clinic webinar on “POTs, Syncope and Other Autonomic Disorders” held November 12, 2014

Posted on October 10, 2014

Cleveland Clinic webinar Date: Wednesday, November 12, 2014 Time: 12:00 PM (EST) (See link at the bottom of this article to register) Autonomic disorders are neurological diseases which can affect the cardiovascular system. Syncope, Dysautonomia and POTs (Postural Tachycardia Syndrome) are the most common forms. Over one million Americans are impacted with a primary autonomic […]

Read More

blog-post-thumbnail
“Pain Awareness Month” to raise awareness of the U.S. Pain Foundation

Posted on September 14, 2014

September is “Pain Awareness Month” in Scituate, RI and several other U.S. towns. Advocates are raising awareness of  chronic pain conditions and the U.S. Pain Foundation.  Stuart and Ellen Lenox Smith have been very active with the U.S. Pain Foundation and EDS Awareness for Ehlers-Danlos Syndrome. Their “Pain Awareness Event” at Miriam Hospital in Providence on Saturday, Sept. 27th will conclude […]

Read More

blog-post-thumbnail
Webinar by Dr. Pocinki – Recording Available

Posted on August 29, 2014

EDS Awareness invites you to listen to Dr. Alan Pocinki’s presentation about  Chronic Pain, Poor Sleep, Depression, and Fatigue in EDS.  Dysautonomia was also addressed in his lecture. Sponsored by www.bodysupportstore.com  PRESENTER:   Alan Pocinki, MD, FACP TOPIC:     Breaking the cycle of Chronic Pain, Poor Sleep, Depression, and Fatigue  Click here for the recording of the educational program  Click here […]

Read More

blog-post-thumbnail
Webinar by Dr. Peter Rowe – Recording available

Posted on July 16, 2014

  EDS Awareness invites you to listen to a replay of this FREE online learning session! Dr. Peter Rowe spoke about managing Orthostatic Intolerance in EDS.     Sponsored by www.bodysupportstore.com    CLICK HERE for a link to the recording   CLICK HERE for the slides used in this presentation     PRESENTER:   Dr. Peter Rowe is a […]

Read More

blog-post-thumbnail
EDS Awareness Educational Series – RECORDING AVAILABLE

Posted on July 2, 2014

  EDS Awareness invites you listen to a replay of a FREE online learning session! On July 2nd, Joel Lamoure spoke  about medication, pain, pitfalls and challenges facing those with EDS and other connective tissue disorders.  Don’t miss this event!     Sponsored by www.bodysupportstore.com    CLICK HERE for a link to the recording CLICK HERE for the slides […]

Read More

Get Webinar Announcements And Our FREE Guide

Support EDS Awareness

See all upcoming events

Current Poll

How long until you received a proper diagnosis for EDS?

View Results

Loading ... Loading ...