Managing Ehlers-Danlos
Ehlers-Danlos Service Dog is Nominated for Kennel Club Award
EDSer Shelley and her service dog, Kibble, have been nominated for the Kennel Club’s Eukanuba “Friends For Life” competition. He has helped her regain much independence! The dog is trained to assist Shelley in all aspects of her life, including retrieving items and pressing the alarm button on the phone if she has an emergency. A Dunstable dog lover and […]
Woman with Ehlers-Danlos Syndrome (EDS) Has Painful Dislocations 10 Times a Day
When Jojo was diagnosed with EDS, she felt relieved! “Finally, I had an answer to why my body is the way it is.” Her EDS went undiagnosed for 24 years! This is not surprising, as our poll indicates more than 50% of EDS patients wait more than 20 years for a proper diagnosis.
“POTs and EDS” Webinar by Dr. Henry Burkholder – Recording Available
EDS Awareness invites you to watch this FREE webinar recording! Sponsored by: www.bodysupportstore.com Dr. Henry Burkholder presents “Postural Orthostatic Tachycardia Syndrome (POTs) and EDS”. He is a Pediatric Cardiologist and presenter at the 2014 EDNF Conference in Houston, TX. PRESENTER: Dr. Henry Burkholder, Pediatric Cardiologist TOPIC: Postural Orthostatic […]
Elisha Doesn’t Regret Decision to Amputate for Ehlers Danlos Pain Relief: Watch VIDEO STORY
Watch this video! Elisha Morgan is recovering from a controversial foot amputation — with no regrets. Whether you agree with her decision or not, there is no doubt of the bravery she’s displayed in this situation — we salute her strong spirit!
Educational Advocacy and Accommodations for Ehlers Danlos Students
Students with medical conditions, such as Ehlers-Danlos Syndrome (EDS), should have equal educational opportunities in all countries. Unfortunately, that isn’t the reality – according to Amy King, an EDS student and advocate for adult education in the UK. Many adults living with Ehlers Danlos Syndrome (EDS) are highly intelligent, motivated and hard-working individuals looking for the opportunity to learn and contribute to their […]
8 Year Old Forest Ranger with Ehlers Danlos Syndrome on TV
Watch this video about a boy with Ehlers Danlos Syndrome whose dream came true! “Eight-year-old Gabriel was officially named an honorary ranger at Yosemite National Park. Gabriel Lavan-Ying, from Gainesville, Florida, has Ehlers-Danlos syndrome, a debilitating and incurable disorder affecting that causes overly flexible joints and effects the skin and blood vessels. But when the Make-A-Wish Foundation […]
Physical Therapy Webinar: “Dry Needling for Ehlers-Danlos Pain”
Watch this FREE educational video presentation! TOPIC: “Dry Needling for EDS Pain Management: Can muscle performance be improved?” PRESENTER: Frank Gargano PT, DPT, OCS, CIDN, MCTA, CWT Sponsored by www.bodysupportstore.com Click here for the video replay! Links to resources mentioned in the video presentation: Dry needling therapy can decrease pain, click here. Dry […]
Cleveland Clinic webinar on “POTs, Syncope and Other Autonomic Disorders” held November 12, 2014
Cleveland Clinic webinar Date: Wednesday, November 12, 2014 Time: 12:00 PM (EST) (See link at the bottom of this article to register) Autonomic disorders are neurological diseases which can affect the cardiovascular system. Syncope, Dysautonomia and POTs (Postural Tachycardia Syndrome) are the most common forms. Over one million Americans are impacted with a primary autonomic […]
