Managing Ehlers-Danlos
“Pain Awareness Month” to raise awareness of the U.S. Pain Foundation
September is “Pain Awareness Month” in Scituate, RI and several other U.S. towns. Advocates are raising awareness of chronic pain conditions and the U.S. Pain Foundation. Stuart and Ellen Lenox Smith have been very active with the U.S. Pain Foundation and EDS Awareness for Ehlers-Danlos Syndrome. Their “Pain Awareness Event” at Miriam Hospital in Providence on Saturday, Sept. 27th will conclude […]
Webinar by Dr. Pocinki – Recording Available
EDS Awareness invites you to listen to Dr. Alan Pocinki’s presentation about Chronic Pain, Poor Sleep, Depression, and Fatigue in EDS. Dysautonomia was also addressed in his lecture. Sponsored by www.bodysupportstore.com PRESENTER: Alan Pocinki, MD, FACP TOPIC: Breaking the cycle of Chronic Pain, Poor Sleep, Depression, and Fatigue Click here for the recording of the educational program Click here […]
Webinar by Dr. Peter Rowe – Recording available
EDS Awareness invites you to listen to a replay of this FREE online learning session! Dr. Peter Rowe spoke about managing Orthostatic Intolerance in EDS. Sponsored by www.bodysupportstore.com CLICK HERE for a link to the recording CLICK HERE for the slides used in this presentation PRESENTER: Dr. Peter Rowe is a […]
EDS Awareness Educational Series – RECORDING AVAILABLE
EDS Awareness invites you listen to a replay of a FREE online learning session! On July 2nd, Joel Lamoure spoke about medication, pain, pitfalls and challenges facing those with EDS and other connective tissue disorders. Don’t miss this event! Sponsored by www.bodysupportstore.com CLICK HERE for a link to the recording CLICK HERE for the slides […]
FREE Educational Webinar on Bracing for EDS – RECORDING AVAILABLE
EDS Awareness invites you to watch this FREE educational video! On June 18th, Eric Palmer spoke about bracing for EDS. He is a board certified Orthotist and Prosthetist with over 20 years of experience. Don’t miss future LIVE sessions offered the 1st and 3rd Tuesdays of each month! “EDS Awareness Educational Series” is a […]
Free Webinar: Dr. Chopra presents EDS Pain Management (Part 1 of 2)
EDS Awareness invites you to watch this FREE webinar presented by Dr. Pradeep Chopra on EDS Pain Management. (Part 1) A recording is available for replay. Receive INVITATIONS for upcoming FREE webinars by signing up for the “FREE Report” on the homepage. Or click HERE. CLICK HERE for the link to the recording of this webinar session. CLICK HERE […]
How Do You Deal With Relatives Who Don’t Understand Your Chronic Illness like EDS?
Ilana Jacqueline Freelance writer, patient advocate This is a challenge for all of us with a Chronic illness. Ilana gives some great suggestions on how to handle this situation. “I don’t generally go into the long and sordid story of how me and the majority of my family get on with my chronic illness. But what […]
Jeff with EDS – “I Just Need to Give my Crazy Movie a Good Ending.”
By ED KEMMICK/Billings Gazette Jeff Hanson has EDS and while struggling with it he is determined to stay strong and make the best of this situation. “Jeff Hansen has Ehlers-Danlos syndrome, a rare connective tissue disorder with symptoms that include extreme flexibility. In mid-November, Jeff Hansen knew he’d reached an important milestone. He […]
