Archive for the ‘Managing Ehlers-Danlos’ Category

Proposed 2016 Guideline for Prescribing Opioids for Chronic Pain

Posted on November 11, 2015

    _ _ _ Proposed 2016 Guideline for Prescribing Opioids for Chronic Pain *** Deadline for Public input — ends Wednesday, January 13th *** Page down to see “4 WAYS you can add your voice” and to view the full list of Proposed Guidelines. Please note that EDS Awareness is not advocating FOR or AGAINST […]

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Free Webinar: “An Integrative Approach to Managing EDS” – Recording Available

Posted on September 29, 2015

Watch the recording of this free webinar. – TOPIC: “Managing Medical Zebras – An integrative approach to managing chronic pain, fatigue, and digestive issues associated with connective tissue disorders”. PRESENTER: Heather Purdin, PT Click here for a link to this recording Click here for the slides used in this presentation    INVITE YOUR FRIENDS and […]

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Free Webinar: “Support Groups for Ehlers-Danlos Syndrome” by John Ferman – Recording available

Posted on August 17, 2015

Watch this video to learn about local EDS groups.
Do you wish for in-person friendships with EDSers who ‘get it’?
Do you have the desire to form a local EDS group, but are not sure where to begin, or what is involved?
Assuming there are too few EDSers in your small city?
You might be surprised!

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The Smiths have Worked Year-Round to Spread the Word about Ehlers-Danlos Syndrome

Posted on April 25, 2015

Ellen and Stuart Smith have been very active in the Rhode Island EDS Awareness and Support Group. They are educating and supporting those with this condition and their caregivers. By MELANIE THIBEAULT, Valley Breeze Staff Writer. SCITUATE – Most of 65-year-old Ellen Lenox Smith’s day is spent managing a painful connective tissue disorder called Ehlers-Danlos syndrome, […]

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How Can Schools Better Understand Ehlers Danlos Syndrome?

Posted on March 30, 2015

The pressures from the school environment are difficult enough when a student is well.  EDS students have more challenges than the average student,and need the cooperation of the school administration and teachers.   By Jenny – Cheetahs In My Shoes “As both a parent of 2 children with Ehlers Danlos Syndrome (or if it isn’t, something […]

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