Archive for the ‘Managing Ehlers-Danlos’ Category

blog-post-thumbnail
8 Year Old Forest Ranger with Ehlers Danlos Syndrome on TV

Posted on December 15, 2014

Watch this video about a boy with Ehlers Danlos Syndrome whose dream came true! “Eight-year-old Gabriel was officially named an honorary ranger at Yosemite National Park. Gabriel Lavan-Ying, from Gainesville, Florida, has Ehlers-Danlos syndrome, a debilitating and incurable disorder affecting that causes overly flexible joints and effects the skin and blood vessels. But when the Make-A-Wish Foundation […]

Read More

blog-post-thumbnail
Physical Therapy Webinar: “Dry Needling for Ehlers-Danlos Pain”

Posted on November 19, 2014

  Watch this FREE educational video presentation!    TOPIC:  “Dry Needling for EDS Pain Management: Can muscle performance be improved?”   PRESENTER:   Frank Gargano PT, DPT, OCS, CIDN, MCTA, CWT   Sponsored by www.bodysupportstore.com      Click here for the video replay!   Links to resources mentioned in the video presentation: Dry needling therapy can decrease pain, click here. Dry […]

Read More

blog-post-thumbnail
Airlines Must Assist Passengers with Disabilities like Ehlers Danlos Syndrome

Posted on November 7, 2014

Travelers with disabilities were polled – and report that they’re being poorly served by the air travel industry. Ehlers Danlos travelers encounter difficulties such as handling luggage, walking through the airport, and getting onto the airplane.  This travel journalist with EDS reports on her personal experiences. In the United States, airlines must abide by laws including the Americans […]

Read More

blog-post-thumbnail
Colon Hydrotherapy is Risky for Ehlers-Danlos Patients

Posted on November 3, 2014

Patients with Connective Tissue Disorders, such as Marfan or Ehlers-Danlos Syndrome, should be aware of the risks of colon hydrotherapy. There is a possible risk of a puncturing a hole in the bowel. Precautions should also be taken by anyone who having prior colon surgery or severe hemorrhoids. By Cari Nierenberg. “Cleaning out the colon is sometimes necessary— […]

Read More

blog-post-thumbnail
Concern Over Subsidised Water Bills for Ehlers Danlos Syndrome

Posted on October 10, 2014

This Irish mother feels the uncertainty over special water allowance limits are an “insult to the ill”. Her daughter, Lauren, has EDS and intestinal failure. It requires extensive water usage to manage her condition. The government and water department are to publish a list of illnesses which will allow sufferers to have their water bills capped. However, Lauren and her […]

Read More

blog-post-thumbnail
Cleveland Clinic webinar on “POTs, Syncope and Other Autonomic Disorders” held November 12, 2014

Posted on October 10, 2014

Cleveland Clinic webinar Date: Wednesday, November 12, 2014 Time: 12:00 PM (EST) (See link at the bottom of this article to register) Autonomic disorders are neurological diseases which can affect the cardiovascular system. Syncope, Dysautonomia and POTs (Postural Tachycardia Syndrome) are the most common forms. Over one million Americans are impacted with a primary autonomic […]

Read More

blog-post-thumbnail
“Pain Awareness Month” to raise awareness of the U.S. Pain Foundation

Posted on September 14, 2014

September is “Pain Awareness Month” in Scituate, RI and several other U.S. towns. Advocates are raising awareness of  chronic pain conditions and the U.S. Pain Foundation.  Stuart and Ellen Lenox Smith have been very active with the U.S. Pain Foundation and EDS Awareness for Ehlers-Danlos Syndrome. Their “Pain Awareness Event” at Miriam Hospital in Providence on Saturday, Sept. 27th will conclude […]

Read More

blog-post-thumbnail
Webinar by Dr. Pocinki – Recording Available

Posted on August 29, 2014

EDS Awareness invites you to listen to Dr. Alan Pocinki’s presentation about  Chronic Pain, Poor Sleep, Depression, and Fatigue in EDS.  Dysautonomia was also addressed in his lecture. Sponsored by www.bodysupportstore.com  PRESENTER:   Alan Pocinki, MD, FACP TOPIC:     Breaking the cycle of Chronic Pain, Poor Sleep, Depression, and Fatigue  Click here for the recording of the educational program  Click here […]

Read More

Get Webinar Announcements And Our FREE Guide

Support EDS Awareness

See all upcoming events

Current Poll

How long until you received a proper diagnosis for EDS?

View Results

Loading ... Loading ...