Managing Ehlers-Danlos

“Every day I wake up is a blessing” … despite Ehlers-Danlos Syndrome

By Richard Salit, Journal Staff Writer. Ellen Lenox Smith’s recurring injuries and ailments were as baffling as they were disabling. Some doctors thought they might even be psychological. Why was she always in such pain? Why did she have difficulty swallowing? Why did she keep tearing cartilage and ligaments in her knees and shoulders? And […]

Free Webinar: “Chronic Pain in Hypermobile Children” – Recording Available

Dr. Neil Schechter presented “Chronic Pain in Children and Adolescents with EDS”.

Free Webinar: “Physical Therapy Protocol for Ehlers-Danlos Syndrome” – Recording Available

Watch the recording of this free webinar.
When you purchase the book through the following link, $1.00 will support EDS Awareness programs.

Free Webinar: “New and Emerging Manual Therapy Approaches for EDS” – Recording Available

Watch the recording of this free webinar. Kelly Clancy, OT and manual therapist, addresses the fascial system and postural components that contribute to pain and dysfunction.

8 Tips for Patients Newly Diagnosed with Ehlers-Danlos Syndrome

Once you are diagnosed with Ehlers-Danlos Syndrome, it can be an overwhelming process to find supportive medical care and learn ways to live life more efficiently and safely.  Get a head start by gleaning some valuable pointers  from the experiences of veteran EDSers like Ellen. The information in this article should not be considered as professional […]

Proposed 2016 Guideline for Prescribing Opioids for Chronic Pain

    _ _ _ Proposed 2016 Guideline for Prescribing Opioids for Chronic Pain *** Deadline for Public input — ends Wednesday, January 13th *** Page down to see “4 WAYS you can add your voice” and to view the full list of Proposed Guidelines. Please note that EDS Awareness is not advocating FOR or AGAINST […]

Free Webinar: “Living Life Again with Dignity Using Medical Marijuana” – Recording Available

Watch the recording of this free webinar. “Living Life Again with Dignity Using Medical Marijuana” presented by Ellen Lenox Smith.

Free Webinar: “An Integrative Approach to Managing EDS” – Recording Available

Watch the recording of this free webinar. – TOPIC: “Managing Medical Zebras – An integrative approach to managing chronic pain, fatigue, and digestive issues associated with connective tissue disorders”. PRESENTER: Heather Purdin, PT Click here for a link to this recording Click here for the slides used in this presentation    INVITE YOUR FRIENDS and […]