Free Webinar – “Understanding the Relationship Between EDS and Postural Orthostatic Tachycardia Syndrome”

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Lauren Stiles, JD

Lauren Stiles, JD

PRESENTER: Lauren Stiles, JD

TOPIC: “Understanding the Relationship Between Ehlers-Danlos Syndrome and Postural Orthostatic Tachycardia Syndrome”

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Lauren Stiles is the President and Co-Founder of Dysautonomia International. Lauren is deeply invested as both a patient advocate and a researcher in trying to understand the complex relationships between Ehlers-Danlos syndrome, autonomic dysfunction and related disorders. In this presentation, Lauren will review what we know about the link between EDS and POTS, and what additional research we need to understand the relationship between these conditions.

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• Lauren Stiles is the President and co-founder of Dysautonomia International.
• Lauren holds a B.A. in Earth & Space Science, with a Minor in Marine Science, from the State University of New York at Stony Brook, and a J.D. and Certificate in Environmental Law from Pace University School of Law.
• She received a two-year Rockefeller Brothers Fund Fellowship, during which she provided fundraising and public relations consulting services to numerous non-profits.
• Lauren developed POTS symptoms overnight at the age 31. After a relentless two-year quest to find an underlying cause for her symptoms, she was finally diagnosed with autonomic neuropathy caused by an autoimmune disease, Sjögren’s Syndrome.
• Since co-founding Dysautonomia International in 2012, Lauren has been an outspoken advocate for individuals living with autonomic disorders. She has lectured on autonomic disorders at the National Institutes of Health, Duke University, Harvard University, Stony Brook University and other medical institutions.
• Lauren co-leads the largest POTS research study to date with researchers at Vanderbilt University and the University of Calgary. She has also developed collaborative POTS research projects with Mayo Clinic, UT Southwestern, University of Oklahoma and the National Institutes of Health. Her research interests have focused on identifying the underlying mechanisms contributing to POTS symptoms, and the relationship between POTS and the many co-morbidities seen in the POTS population, including EDS.
• Lauren serves on the Ehlers-Danlos Society’s Patient Expert Panel, and is a member of the Autonomic Working Group of The International Consortium on Ehlers-Danlos Syndromes & Related Disorders.

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