Archive for the ‘Exercise’ Category

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5th Grader with Ehlers-Danlos Joins OSU Women’s Hockey Team: Watch VIDEO

Posted on January 7, 2015

Watch this fun video of 10-year-old Erin joining the Ohio State Hockey Team through a program called Team IMPACT. Since Ehlers-Danlos makes Erin more susceptible to injury, it’s unlikely she’ll be able to participate in sports with her peers. But, spending time with the Buckeyes gives Erin the experience of being on a team. Erin has gained the […]

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Tennis Coach Gives Hope to Teen with Ehlers Danlos Syndrome

Posted on September 6, 2014

Megan has a new motivation to stay active despite Ehlers Danlos Syndrome. Her high-school tennis coach has paved the way for her to participate in modified varsity competition! Her strength and dedication has inspired her coach and peers. Megan also participates in the EDS support group in Columbus, Ohio. By Steve Blackledge “Les Somogyi couldn’t help but feel for […]

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Life as a zebra

Posted on August 18, 2014

An aspiring and promising young gymnast learns that she will never be able to compete again after a reconstructive surgical operation goes wrong. When her body starts to break down, she hunts for answers only to find that it would stump even the best of doctors available in the Midwest. But when she almost loses […]

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Exercise and Lifestyle Therapies are Key to Managing POTS

Posted on July 11, 2014

POTS experts, Dr. Blair Grubb and Dr. Geoffrey Heyer, explain the symptoms and treatments.  Studies have indicated that 1 in 4 of those diagnosed with POTS are disabled. Exercise helps by enhancing the effectiveness of the peripheral skeletal muscle pump, according to Dr. Grubb. By Deborah Kotz.  As a consumer health reporter, I assume I’ve heard of every health […]

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Living with Joint Hypermobility While Reducing and Preventing Pain

Posted on June 1, 2014

By Dr. Brad Tinkle – Medical Director of Clinical Genetics at Advocate Children’s Hospital. EDS expert, Dr. Brad Tinkle, shares his recommendations for managing Ehlers-Danlos Syndrome. Joint hypermobility is common condition like being taller or shorter than average. Obviously, some people have more mobile joints than others and this can depend on gender, age, ethnic background, and […]

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Indiana Woman Training for 5K Walk to Conquer EDS

Posted on May 27, 2014

Ashley won’t let Ehlers-Danlos Syndrome stop her from walking a 5k race with her family.  Watch the news coverage video about her story and her desire to raise EDS awareness. By Jon Swaner Click here to watch the video of the news report. (WTHI) – One woman says she won’t let her chronic illness keep her […]

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Rowing is Still Claire’s Passion in Life, Despite Ehlers-Danlos Syndrome

Posted on March 15, 2014

Every day is a struggle for Claire, but the rewards from rowing make it all worthwhile.   Written by LYDIA FALLON “Out on the water is where Claire Connon feels most at home. Rowing down the River Cam as the sun begins to rise; wind in her hair and a smile on her face, the 28-year-old […]

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