Archive for the ‘Exercise’ Category

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Indiana Woman Training for 5K Walk to Conquer EDS

Posted on May 27, 2014

Ashley won’t let Ehlers-Danlos Syndrome stop her from walking a 5k race with her family.  Watch the news coverage video about her story and her desire to raise EDS awareness. By Jon Swaner Click here to watch the video of the news report. (WTHI) – One woman says she won’t let her chronic illness keep her […]

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Rowing is Still Claire’s Passion in Life, Despite Ehlers-Danlos Syndrome

Posted on March 15, 2014

Every day is a struggle for Claire, but the rewards from rowing make it all worthwhile.   Written by LYDIA FALLON “Out on the water is where Claire Connon feels most at home. Rowing down the River Cam as the sun begins to rise; wind in her hair and a smile on her face, the 28-year-old […]

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EDS Doctor Speaker Series – 1/22/2014 – RECORDING AVAILABLE

Posted on January 23, 2014

Watch the presentation by Dr. Michael Healy, PT on “Pain Management Treatment for EDS Patients: A Manual Physical Approach”. Click on the link above. “EDS Doctor Speaker Series” is a webinar program hosted by EDSawareness.com Sponsored by: www.bodysupportstore.com  This is a very detailed and descriptive discussion of Physical Therapy techniques to help EDS patients release pain […]

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Teen Defies Ehlers-Danlos Syndrome to Dance Ballet

Posted on December 23, 2013

 In spite of Ehlers-Danlos Syndrome, Sarah continues to stay active with her dancing and exercise to keep her muscles strong. By Wendy Sledd. “Sarah Sutton glides across the floor as if dancing is a natural act for her. It is anything but. With extreme care, Sarah steps up on her toes to dance en pointe ballet […]

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Jeff with EDS – “I Just Need to Give my Crazy Movie a Good Ending.”

Posted on December 1, 2013

By ED KEMMICK/Billings Gazette     Jeff Hanson has EDS and while struggling with it he is determined to stay strong and make the best of this situation.   “Jeff Hansen has Ehlers-Danlos syndrome, a rare connective tissue disorder with symptoms that include extreme flexibility. In mid-November, Jeff Hansen knew he’d reached an important milestone. He […]

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New Castle Native Overcomes Ehlers Danlos for Swimming Success

Posted on November 11, 2013

 Kyler’s love of sports and his perseverance lead him to swimming as the greatest love in his life. By Corey J. Corbin       NEW CASTLE — Imagine feeling excruciating pain when you wake up each morning. “Same thing when you try to walk down the stairs to start your day — or even attempt […]

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EDS Awareness Speaker Series – Alberto Friedmann – Recording

Posted on November 5, 2013

  We had a special event for our EDS Speaker Series session on November 4, 2013. Our EDS Partners at Arming Champions (Allen and Carolyn Fisher) conducted an interview with Alberto Friedmanncall for them who is a Martial Arts Master with Ehlers-Danlos Syndrome. He also teaches martial arts and self-defense to children and adults with special needs. You can listen […]

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Discovery Health Channel: Ehlers-Danlos Syndrome

Posted on November 1, 2013

Discovery Health Channel presents an episode about Ehlers-Danlos Syndrome. This TV segment portrays Alberto Friedman’s family of EDSers and describes the challenges they face.  It addresses EDS Hypermobility and Vascular types.

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