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Hypermobility

Three illustrations of people bending their neck forwards and back. Text: Q&A Interview: Two Physical Therapists talking Upper Cervical Instability

New Cervical Spine Instability Publication: The Authors Explain Their Findings

March 27, 2023

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A woman on a couch reading a book while the sun shines through a large window.

4 Tips on How To Navigate School as a Student with Ehlers-Danlos Syndrome

March 1, 2023

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Blue lines that connect

PT Elan Schneider on Neuroplasticity and New Approaches to Treat Chronic Pain

February 28, 2023

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Unaccommodating Accommodations

February 26, 2023

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An illustration of several surgeons with masks and hats.

Surgery Prep: Meeting Your EDS Hospital Stay Needs

February 22, 2023

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Dr. Lilian Holm on EDS & Physical Therapy. Dr. Lilian Holm, a woman with shoulder-long brown hair and bangs, is sitting in her office, which is a large room with a turquoise wall behind her and an open fireplace. She sits on a beige chair and wears a black shirt and a delicate golden necklace. In the background is a treatment bench in the foreground two red flowers.

EDSed Episode 2: Dr. Lilian Holm on Physical Therapy & EDS

January 27, 2023

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An image of a beach at sunset in the background with a quote int he foreground: Be kind and loving to yourself. Wrap yourself in a blanket of love. You deserve it!

Wrap Yourself in a Blanket of Love: How to Foster Self-Compassion

January 23, 2023

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A young woman next to a man. The woman has long blonde hair and is wearing a blue shirt and white pants. She sits on a beige chair and smiles slightly. On her arm some tattoos are visible. Next to her sits a man with short brown hair, wearing a blue shirt and a dark blue jacket.

EDSed Episode 1: The Norris Lab

November 21, 2022

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EDS Awareness is the primary initiative of Chronic Pain Partners, a patient-led nonprofit and a trusted voice in the Ehlers-Danlos community since 2011. Our mission is not only to raise awareness of Ehlers-Danlos Syndromes, but to support patients in navigating life after diagnosis.

Through our articles, newsletters, multimedia, and community storytelling, we help patients, medical professionals, and the broader community better understand EDS and its wide variety of comorbid conditions. By translating emerging research and connecting patients with experts, we turn complex medical information into clear, actionable knowledge that patients can use. We also offer practical guidance for everyday life with EDS, from addressing medical trauma to identifying the best supportive tools.

At EDS Awareness, our goal is to ensure every patient has the support and resources they deserve to live a full and active life with EDS.

Chronic Pain Partners, a US-based non-profit 501(c)(3) organization.

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