Episode 3: Neurodivergence

In this episode, Cassandra and Marcia speak with Jan Groh, fellow EDSer, advocate, creator of the Oh Twist blog and co-author of the EDS Toolkit. Listen to Episode 3:  https://traffic.libsyn.com/440c2355-6390-46d3-a3b5-0ecaf22ea9e9/Jan_Podcast_FINAL_1.mp3   Transcript:  Marcia You’re listening to the EDS Unplugged podcast, brought to you by Chronic Pain Partners, a nonprofit supporting the Ehlers-Danlos Syndrome community. Welcome […]

A Cheerful Gift Guide for People with EDS, Chronic Pain, Chronic Illness, Disability, and Those Who Love Them: Chronic Pain Partners’ 2025 Gift Guide

Shopping for someone with chronic illness or chronic pain can feel weirdly high stakes.Should you get something comforting?Something fun?Something practical?Something that has nothing to do with their medical life at all? The answer: Yes to all of that. This guide mixes comfort items, purely-for-fun treats, and practical helpers that can make life a little easier. […]

Book Review: The Chemistry Test

Episode 2: Medically Complex Children

Listen to the full episode here:  Cassandra You’re listening to the EDS Unplugged podcast brought to you by Chronic Pain Partners, a non-profit supporting the Ehlers-Danlos Syndrome community.   Marcia Welcome back to EDS Unplugged. I’m Marcia Brock.   Cassandra And I’m Cassandra A Campbell.    Marcia Today we are excited to be joined by […]

New App Can Help Screen for EDS

The Hypermobility Assessment Tool (HAT) app empowers patients who suspect they have EDS by putting the first steps of the screening process directly into their hands.

The Hidden Disabilities Sunflower Lanyard: Making the Invisible Visible

The Hidden Disabilities Sunflower lanyard can help patients with EDS signal to others that they may need extra understanding, support, or time in workplaces, shops, or other public spaces. 

Research Round-up, Edition Six

In memory of John Ferman, Founder and President of Chronic Pain Partners / EDS Awareness

With heavy hearts we are sharing that our founder and team champion John Ferman has peacefully passed away Tuesday night, November 11, 2025, surrounded by his daughters, Deanna and Deborah.   John founded Chronic Pain Partners/EDS Awareness in 2011 in an effort to raise awareness and understanding about EDS and related conditions after his wife Carol […]