This month, we wanted to give you a peek into the daily lives of our team members by asking them to share a few of their favorite go-to supportive items for Ehlers-Danlos syndromes (EDS) or hypermobility spectrum disorders (HSD). While these aids might be what work for us personally, we hope they offer inspiration and ideas to help you live your life to the fullest with EDS/HSD.
What Two New Studies Say About the Head, Neck, and hEDS People with Ehlers-Danlos syndrome have heard for years that their symptoms are “in their head.” In one sense, that may be true—but not in the way we all hate to hear. When it comes to symptoms like headaches, nausea, dizziness, brain fog, visual disturbances, […]
Karina Sturm: Hi Jeevan, so good to see you again! When did your Ehlers-Danlos journey start? Jeevan Mann: I’ve had symptoms my entire life. I’ve been an athlete, so I’ve played almost every sport you could think of, from tennis, golf, boxing, and jujitsu. Throughout that, it became quite apparent that I was different from […]
They already understood.They already cared.They already believed. The next day, he was home again.And suddenly our phone rang with kindnessoffers of meals, ears, hands, hearts.Teachers, caregivers, friendsall reaching toward usinstead of away. After fourteen years of walking alone,this flood of support felt surreallike stepping into warm waterafter years of winter cold. But perhaps this is […]
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Popular People With Ehlers-Danlos Syndrome
In memory of John Ferman, Founder and President of Chronic Pain Partners / EDS Awareness
EDS Physical Therapy Book & Free Webinar: “Living Life to the Fullest with Ehlers-Danlos Syndrome”