Articles
Neurodivergence and Hypermobility: The Autism-EDS Connection
Chronic Pain Partners introduced the topic of neurodivergence and Hypermobility Spectrum Disorders (HSD) and Ehlers-Danlos Syndrome (EDS) in our first newsletter this year (January 2025), but autism has been shown to co-occur with EDS for many years, with an early published case dating back as far as 1993 and another in 2011. Neurodivergence comprises a […]
Hypermobile and Hypersensitive? Understanding Sensory Processing Today
Sensitivity in the Spotlight and Why Labels Matter More Than Ever In today’s politically charged climate, the act of labeling—whether as a diagnosis, identity, or personality trait—has become a battleground. With the current administration rolling back Diversity, Equity, and Inclusion (DEI) initiatives, discussions around neurodiversity, sensitivity, and individuality are under scrutiny. But what happens when […]
Exhausted Existence – A New Documentary on Living with EDS
For many living with Ehlers-Danlos syndrome (EDS), the road to diagnosis is long, exhausting, and often isolating. The upcoming documentary “Exhausted Existence – An EDS Story (2024)” aims to change that. This powerful film brings to light the struggles of those with EDS, the failures of the medical system, and the urgent need for greater […]
EDS Expenses Exposed: Report Peeks at Financial Burden of Living with Ehlers-Danlos
If you or someone you know is dealing with Ehlers-Danlos Syndromes (EDS), understanding the financial impact is crucial, and until now could not be quantified by research. A recent study’s results published in early 2025 recaps the highlights. The new report, The Financial Impact of Ehlers-Danlos Syndromes on Patients in the United States in 2022 […]
Much More Than That
One-liner: A family’s journey of finding their identity on the intersection of disability and queerness. Synopsis: Much More Than That is a 15-minute short film that delves into the lives of the Pollock family, who share deep connections that transcend their heritage. Jack and his mother Maria both live with Ehlers-Danlos syndrome, a rare and […]
How Rebecca Yarros’ “Fourth Wing” Embodies Ehlers-Danlos Syndrome
What if the hero of a bestselling novel shared your struggles—and your strength? Rebecca Yarros’ Fourth Wing, the first book of a fantasy series, follows Violet Sorrengail, a young woman forced to join a brutal dragon rider academy and fighting her way through life-threatening challenges, fierce rivalries, and the unrelenting physical toll of her training. […]
Digesting the Facts: Tackling Gastrointestinal Challenges in EDS
Living with Ehlers-Danlos Syndrome (EDS) often feels like piecing together a puzzle without being able to visualize the final desired image. Patients poke at fixing separate symptoms while no one is tying the whole picture together. This creates difficulties when multiple systems come together like they do in the nutrition and waste mechanisms within the […]
Neurodivergence and Hypermobility: Understanding the EDS Connection
Imagine waking up each day with a body that feels both familiar and unpredictable, where the simplest movements demand careful calculation, and even routine tasks like washing the dishes can hold hidden challenges and pain. This is the world of those living with Ehlers-Danlos Syndrome (EDS), a condition that intertwines with the very fabric of […]
