Articles

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The Road to Recovery Was Paved By Me and My Wheelchair: Q&A With Ryann Mason

Posted on December 22, 2022

Many people with chronic illnesses, like Ehlers-Danlos syndrome (EDS) or other disabling or deteriorating conditions, are often afraid of the possibility of “ending up in a wheelchair.” It is a real fear. But what if we changed our thinking? Wheelchairs provide freedom; they aren’t the end, but empowering and enabling for the user. And sometimes, […]

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Para climber Anoushé Husain on “believing in the impossible”, her cancer diagnosis, EDS journey, and the sports she loves

Posted on November 29, 2022

For our December newsletter, journalist Karina Sturm interviewed Anoushé Husain. Husain is a civil servant and paraclimber who broke the Guinness Book of World Records for climbing the greatest distance on a climbing wall in one hour, as a female climber with only one hand. She was born with half an arm, has beaten cancer, […]

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The 12 Gifts of Blissmas: This Holiday Season’s Gift Guide for the EDS Warrior

Posted on November 22, 2022

Let’s be blunt: chronic illness and pain sucks. Many of us don’t only live with Ehlers-Danlos Syndrome (EDS), but also have a variety of comorbid conditions such as postural orthostatic tachycardia syndrome (POTS) and mast cell activation syndrome (MCAS), affectionately known as the EDS trifecta. Living with all of these takes ‘chronic illness and pain’ […]

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EDSed Episode 1: The Norris Lab

Posted on November 21, 2022

EDSed is our new series of full-length interviews with international EDS experts.  These educational interview series with journalistic (news) quality is complementary to our webinar recordings and another free resource we provide for our community. All films are produced by journalist, and We Are Visible filmmaker Karina Sturm and sponsored by Chronic Pain Partners. You […]

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EDS Holiday Hacks: Twelve Tips for Setting Yourself Up for Success by Realigning Your Expectations

Posted on November 21, 2022

This time of year, it can be hard for anyone, especially those with a chronic illness like Ehlers-Danlos syndrome (EDS), to gear up for the holiday madness. The pressure to shop, cook, wine, dine and be fine is too much! You might not be able to travel or gather with loved ones for various reasons, […]

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Chronic Illness Advocate Brianne Benness about her EDS journey and #NEISVoid

Posted on November 2, 2022

For our November newsletter, journalist Karina Sturm interviewed Brianne Benness, the host of No End In Sight, a podcast about life with chronic illness and a chronically ill person’s journey to diagnosis. She is a co-founder of Stories We Don’t Tell, where she talks about hypermobility, mast cell disorders, and recontextualizing old experiences using new […]

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Book Review: Holding It All Together When You’re Hypermobile

Posted on October 22, 2022

  For our Chronic Pain Partners Post edition of November 2022, journalist Karina Sturm reviews author and fellow zebra Christie Cox’s new EDS book called Holding It All Together When You’re Hypermobile. In this article, we will provide more information on the book’s content and what distinguishes Cox’s book from other available Ehlers-Danlos Syndrome resources. […]

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We Are Visible Too! Episode 1: Sarah Rightmire

Posted on October 22, 2022

  We Are Visible (Too) is an ongoing mini-film series portraying people with EDS all across the globe. In this mini-documentary series, we will continue on the We Are Visible  – a feature-length film about people with EDS – journey and add a variety of 5 – 10 minute videos of other people across the […]

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