Articles

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New Cervical Spine Instability Publication: The Authors Explain Their Findings

Posted on March 27, 2023

For Chronic Pain Partners Newsletter, writer Christie Cox speaks with two pioneers in the Ehlers-Danlos community Leslie Russek and Susan Chalela, about their recent publication on upper cervical instability (UCI). Leslie Russek is a DPT, PhD, and Professor Emeritus of Physical Therapy at Clarkson University and an Orthopedic Certified Specialist Physical Therapist with over 30 […]

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AI Meets Medicine: Can ChatGPT Unlock Answers to Your Medical Questions?

Posted on March 26, 2023

By now, you’ve probably heard the buzz around artificial intelligence (AI) and the hottest new thing in ChatGPT. ChatGPT is growing more rapidly than TikTok – currently averaging a user base of 13 million people every day! Talk about a craze, and it got us thinking. The Chronic Pain Partners media team was curious about […]

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4 Tips on How To Navigate School as a Student with Ehlers-Danlos Syndrome

Posted on March 1, 2023

Living with Ehlers-Danlos Syndrome (EDS) as a high school student can be especially challenging. The normal struggle of balancing academics, extracurriculars, and social life, all while trying to figure out who you are as a person, is overwhelming for most teenagers and is made more complicated when having to manage a chronic illness. Many times, […]

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PT Elan Schneider on Neuroplasticity and New Approaches to Treat Chronic Pain

Posted on February 28, 2023

Widespread chronic pain is one of the main symptoms for people with any type of Ehlers-Danlos syndrome and can be debilitating. At the same time, many common treatment options, particularly with pain medication, lead to side effects. But what if we could reduce our pain without any negative consequences? Chronic Pain Partners’ Editor-in-Chief Karina Sturm […]

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Unaccommodating Accommodations

Posted on February 26, 2023

I want to be okay. Some days I am. But some days, it feels like my words slosh about disjointed. My eyelids are heavy shades that won’t stay open. Pain suffuses every joint in my body, and the throbbing in my head makes it impossible to tolerate light or noise. Day-to-day is unpredictable, sometimes moment […]

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Book Review: The Bendy Twisty Zebra by Kimby Maxson

Posted on February 23, 2023

Move over, Dr. Seuss! Make room on children’s bookshelves for The Bendy Twisty Zebra written by Kimby Maxson and illustration by Ron Houchens. With colorful characters, catchy rhymes, and a heart-felt message, The Bendy Twisty Zebra brings to mind some of Dr. Seuss’s famous books. While children of all ages (even grown-up children!) can enjoy […]

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Surgery Prep: Meeting Your EDS Hospital Stay Needs

Posted on February 22, 2023

How to be prepared & stay safe when having a hospital stay with Ehlers-Danlos syndrome (EDS) This article will give an overview of ways you can prepare for a hospital stay when you have EDS, as well as tips on surgical prep and your own patient advocacy. People with Ehlers-Danlos syndrome (EDS) often need surgery […]

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Basic Emergency Care Planning for EDS Patients

Posted on February 21, 2023

Creating an emergency plan document is essential for patients with Ehlers-Danlos syndrome (EDS) and its many comorbidities, especially allergic or mast cell activation reactions. Take time to prepare in advance for an emergency before you get hit by a crisis by following these step-by-step instructions for your own safety and well-being. Create a written plan […]

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