CSF – Unite@thehill – June 23-25, 2018

Posted on April 11, 2018

For the past few years, CSF has stormed Capitol Hill with you to make a difference for people living with Chiari malformation, syringomyelia, Ehlers-Danlos syndrome and many other related disorders… and it seems like Congress is really listening. I n February 2015, Congress voted to increase the NIH budget by $31.3 billion to support more biomedical research. In 2016, […]

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W Virginia Tri-state EDS support group promoting EDS Awareness Month 

Posted on April 3, 2018

Tri-state EDS support group members were interviewed to discuss EDS Awareness Month Ashton Nesmith-Kochera is with Victoria Graham and 8 others By: Jonathan Hunter Updated: May 17, 2018 11:18 PM EDT Click here for the link to the video of this interview   MARTINSBURG, W.Va. – The month of May is Ehlers-Danlos Syndrome Awareness month. EDS is an inherited condition that affects […]

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Many Ehlers- Danlos Patients Cannot go Numb at the Dentists

Posted on April 1, 2018

By Chris Baraniuk Some people are resistant to local anaesthetic, meaning they must endure dental and medical procedures without such pain relief. And we’re only beginning to understand why. To Lori Lemon, the doctors all seemed flabbergasted. She had come in to the Mayo Clinic in Jacksonville, Florida, to have a lipoma – a growth […]

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