Articles
Posted on January 12, 2024
A new study from Ghent, Belgium, discusses the difference between pain sensation and pain thresholds between subjects with genetically-confirmed classical Ehlers-Danlos syndrome (cEDS) and those without any form of Ehlers-Danlos Syndrome (EDS). The article, published in The Journal of Pain, discussing this research is “Sensory Profiling in Classical Ehlers-Danlos Syndrome: A Case-Control Study Revealing Pain […]
Posted on January 10, 2024
The Ehlers-Danlos Syndromes may be considered a group of (mostly) rare connective tissue disorders; however, our community is more diverse and stronger than ever, with many advocates sharing their experiences and knowledge via social media. Chronic Pain Partners put together a list of EDS advocates meant to be a work in progress and, of course, […]
Posted on January 4, 2024
One of the earliest lessons in flight training is the aviation order of operations: Aviate, Navigate, Communicate. In pilot training, those words mean the following. Aviate: Use the skills to maintain control of the aircraft. Navigate: Know where you are, and where you intend to go. Communicate: Let someone know your plans and needs. Maybe […]
Posted on January 1, 2024
Chronic Pain Partners is excited to speak with David Jameson Harris, a former McKinsey consultant, about his latest project, a new Ehlers-Danlos syndrome clinic, hopefully offering access to expert EDS care in several states starting in February 2024. CPP’s Karina Sturm spoke with David Jameson Harris about his new EDS clinic, his goals, and how […]
Posted on November 8, 2023
This article was collected by the EDS Awareness volunteer media team with information and medical review provided by David Harris, MD, from the Center for Healing and Regenerative Medicine (CHARM) in Austin, Texas. www.charmaustin.com. We are grateful to all the care providers who work to help EDS patients access more information and achieve a better […]
Posted on November 6, 2023
In this interview, Christie Cox speaks with a rising doctor who also has hEDS and other comorbidities, Roman Fenner. Fenner is currently enrolled in the Medical University of South Carolina (MUSC) as a dual enrollment student for an MD and PhD – meaning he will learn how to lead medicine and science combined in an […]
Posted on August 31, 2023
This is the second article in our series covering psychological medical trauma. The first article provided an introduction to what concepts of psychological medical trauma exist and the newly-created concept of clinician-associated trauma. It also introduced a study regarding hEDS patients and clinician-associated trauma. This article will look deeper into the details of this study […]
Posted on August 23, 2023
Living with a rare disease like hEDS (Hypermobile Ehlers-Danlos Syndrome) can lead to misunderstandings and sometimes offensive comments from people who don’t get it. However, handling these remarks with wit and wisdom can make the situation easier and lighten the load. Here are ten clever comebacks for handling offensive comments about hEDS: “You’re just lazy.” […]