Articles
Book Review: The Chemistry Test
It is a truth universally acknowledged that people in possession of rare illnesses rarely see themselves represented in media. Hopefully Jane Austen will allow the borrowing of Pride and Prejudice’s opening to introduce a new novel that breaks that rule. The Chemistry Test is Georgina Frankie’s debut coming-of-age romance novel. The book follows Penelope “Penny” […]
Episode 2: Medically Complex Children
Listen to the full episode here: Cassandra You’re listening to the EDS Unplugged podcast brought to you by Chronic Pain Partners, a non profit supporting the Ehlers-Danlos Syndrome community. Marcia Welcome back to EDS Unplugged. I’m Marcia Brock. Cassandra And I’m Cassandra A Campbell. Marcia Today we are excited to be joined […]
New App Can Help Screen for EDS
The Hypermobility Assessment Tool (HAT) app empowers patients who suspect they have EDS by putting the first steps of the screening process directly into their hands.
The Hidden Disabilities Sunflower Lanyard: Making the Invisible Visible
The Hidden Disabilities Sunflower lanyard can help patients with EDS signal to others that they may need extra understanding, support, or time in workplaces, shops, or other public spaces.
Research Round-up, Edition Six
Previous editions of Research Round-up can be found at the following links: Edition 5 (Pediatrics) Edition 4 (Neurodivergence) Edition 3 Edition 2 Edition 1 Howdy, partners! This Research Round-up has roped in a whole herd of topics for you. We hope you enjoy the read, learn a thing or two, and feel […]
In memory of John Ferman, Founder and President of Chronic Pain Partners / EDS Awareness
With heavy hearts we are sharing that our founder and team champion John Ferman has peacefully passed away Tuesday night, November 11, 2025, surrounded by his daughters, Deanna and Deborah. John founded Chronic Pain Partners/EDS Awareness in 2011 in an effort to raise awareness and understanding about EDS and related conditions after his wife Carol […]
“Watch Out For Mum” – Wrongful Child Abuse Allegations Harms Whole Family
Parenting children with Ehlers-Danlos syndromes — or EDS — is a sport on its own. From the moment my children were born, I knew something wasn’t right. They were symptomatic from birth, but for years, doctors couldn’t figure out what was going on. And even when we finally found answers, the hardest battles weren’t against […]
EDS Unplugged Podcast, Episode 1: Invisible Disabilities Awareness with Kate Schultz
We are very pleased to announce the first episode of the EDS Unplugged podcast, brought to you by Chronic Pain Partners. In this episode, Cassandra and Marcia speak with Kate Schultz about what we do here at Chronic Pain Partners and living with EDS in the run up to Invisible Disabilities Week. Listen to Episode […]
