Dr. Peter Byers Webinar on Vascular Ehlers-Danlos Syndrome – Video Recording
EDS Awareness invites you to watch this FREE webinar recording!
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TOPIC: “Vascular Ehlers-Danlos Syndrome / EDS type IV”
PRESENTER: Dr. Peter Byers
About our speaker: Dr. Byers is Director of the Collagen Diagnostic Laboratory (CDL) at the University of Washington in Seattle, WA. He is also a Professor of Medicine and Pathology and Adjunct Professor of Genome Sciences at UW.
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An “EDS type IV Passport” is available for recently diagnosed individuals and families hoping to learn more about EDS type IV (Vascular Ehlers-Danlos Syndrome) or to anyone needing help distributing information about this very rare disease. The Passport contains information about EDS type IV, its complications, their treatment, and their prevention. To obtain a Passport, please contact Dru Leistritz at firstname.lastname@example.org.
About our speaker: Peter H. Byers, MD
Dr. Byers is a Professor of Medicine and Pathology and Adjunct Professor of Genome Sciences at the University of Washington in Seattle. Dr. Byers is Board Certified in Clinical Genetics and Internal Medicine.
Dr. Byers is Director of the Collagen Diagnostic Laboratory (CDL) which is housed in the Department of Pathology at the University of Washington in Seattle, WA. The CDL offers diagnostic testing for several forms of Ehlers-Danlos syndrome (EDS), osteogenesis imperfecta (OI), and select other connective tissue disorders. They also provide consultation for clinicians and families with questions on these rare disorders, review x-rays and clinical history, and offer research testing and enrollment in research studies.
Click here for more information about the COLLAGEN DIAGNOSTICS LAB
Dr. Byers’ research has the objective of understanding the molecular pathogenesis of inherited disorders of connective tissue. His research has focused on disorders that affect collagen genes and the enzymes involved in the post-translational modification of collagens.
Univ. of Calif. San Francisco – Internship, Residency
Univ. of Washington – Fellowship
4 thoughts on “Dr. Peter Byers Webinar on Vascular Ehlers-Danlos Syndrome – Video Recording”
Looking forward to this! I don’t see much about Vascular EDS…most things in print are about the HYPERMOBILITY TYPE. Sure wish Dr Byers or another doc would write a book about Vascular Type. I was 36 when I was diagnosed…far too long to go without knowing what I had. I pray that in the future, EDS won’t be so elusive for others.
When is genetic testing in order for possible Vascular EDS , how can it be treated/managed medically, and what type(s) of health care providers should be involved? EXAMPLE: Patient was diagnosed by an orthopedic surgeon in Pittsburgh, PA with extremely flexible hyperjoint mobility in 1970. (She was in 8th grade.) Since then she has had MULTIPLE issues related to connective tissue disorders i.e. diagnosed with myopia @ age 9;fibroids & endometriosis “most likely since early puberty” of 10 yrs; multiple sprains and strains of hands, wrists and spine; osteopenia at age 39, labral tears in both hips at age 46 & then 54; ideopathic migraines with concurrent light sensitivity @ 57; sudden vitreous gel detachment in both eyes at the age of 58; and now in July 2014, diagnosed with eye convergence insufficiency. As of Dec. 2014, this patient has been diagnosed with high blood pressure and has just begun treatment with Losartan. Family history of heart disease along maternal and paternal lines (e.g atrial fibrillation, sudden death heart failure, congestive heart failure & COPD) Q#1: Is genetic testing in order for Vascular Ehlers-Danlos Syndrome for such type of a patient? Q# 2: What data is needed to warrant such review? Q#3: By whom? Thank you.
This is an early Christmas Present. I can’t wait for this to start. What a gift Dr. Peter has been to the veds community!
Hi I’m trying to reach Dr.Byers so that I can get my records and have tried everything.You diagnosed me with having both Ehlers Downlos and Marfans syndrome at children’s hospital of university of Pennsylvania when I was a young teen.Because of you I was able to get my reconstructive surgery and find how to get threw theses complications and I thank you but I left several emails and had left you a message by phone.Its urgent I get any records you may still have and Marfans Foundation has told me you verified to have them.Thank you for your time I hope to hear back from you.Take care