Teens
Fairfield Senior with EDS Takes Her Graduation Walk
By Michael D. Pitman Staff Writer Elizabeth Schulze worked for years to be able to garner the strength and stamina to walk across the stage and receive her high school diploma. While the act is easy for most high school seniors, it was not for Schulze. Amy Schulze said her daughter, who plans to attend […]
Alaska Ehlers-Danlos Syndrome Awareness Month Coloring Competition.
Alaska Ehlers-Danlos Syndrome Awareness Month Coloring Competition. Start Date: May 1, 2016 at 12:00 am End Date: May 31, 2016 at 11:59 pm Rules: Attached you will find a picture of a zebra bust that was designed and drawn by the artist Katie Zamudio, Doodlebug Coloring Books. Starting May 1, 2016 at 12:00 am […]
Free Webinar: “Chronic Pain in Hypermobile Children” – Recording Available
Dr. Neil Schechter presented “Chronic Pain in Children and Adolescents with EDS”.
Australian PT Receives Well-Deserved Nomination by Ehlers-Danlos Teen
By: Clair Morton. – Libby Nash, a physiotherapist in Australia, has been nominated by her patient for an award. She is dedicated to helping teen Lily Warren strengthen her joints affected by Ehlers-Danlos Syndrome. GRAFTON physiotherapist Libby Nash has gone above and beyond to improve the life of teenager Lily Warren, who lives with a rare and debilitating […]
Family with Humor and Faith Managing Their Ehlers-Danlos Syndrome
This Cincinnati family has 4 members with Ehlers-Danlos. Their strong faith gives them courage to persevere. They believe their childrens’ challenges have helped them to grow and become better people. Amy Schulze and her daughter, Elizabeth, lead 2 support groups for EDSers. By Sue Kiesewetter, Enquirer contributor. FAIRFIELD TWP. – Seventeen-year-old Elizabeth “Wizzy” Schulze used to think being tired […]
McCullough Students Sing to Help Girl with Ehlers-Danlos Syndrome
These very talented students are providing awareness for a child with Ehlers-Danlos Syndrome. McCullough Junior High School choir students raised thousands of dollars during their third annual pop concert benefiting a Woodlands-area family in need.
When Food Allergies Are Actually Mast Cell Activation Syndrome
Brynn had a long history of adverse reactions to many foods she was eating, but finally determined it was not traditional food allergies! She has found ways to manage her Mast Cell Activation Syndrome – including EpiPens and a service dog. By Kira Peikoff The Symptoms Brynn Duncan was 11 years old when her stomach started to revolt against food. Frequently […]
How Can Schools Better Understand Ehlers Danlos Syndrome?
The pressures from the school environment are difficult enough when a student is well. EDS students have more challenges than the average student,and need the cooperation of the school administration and teachers. By Jenny – Cheetahs In My Shoes “As both a parent of 2 children with Ehlers Danlos Syndrome (or if it isn’t, something […]
