Conferences
Ten Years and a Time Capsule: What Changed, What Didn’t, and What’s Next
July is a busy month in the Ehlers-Danlos world. The EDS Society’s Annual Global Learning Conference takes place in Allen, Texas, on July 24-26. It will feature a great lineup of esteemed physician speakers, patient organizations, advocates, and presentations covering this year’s theme: “Exploring Comorbidities in EDS & HSD.” It is also the Ten-Year […]
Why May is The Moment for “Complicated”
We didn’t plan it this way, but the release of our documentary film, Complicated, on Apple TV in May feels almost fated. Between Ehlers-Danlos Syndrome (EDS) Awareness Month and Mother’s Day, the timing reflects the very heart of this project that we started nine years ago. To see it come to fruition has been incredible, and I […]
Making Misdiagnosis and Misunderstanding a Thing of the Past
What Chronic Pain Partners has done for the community lately.
Ehlers-Danlos Syndrome & Hypermobility Spectrum Patient Symposium – NYIT Recording
Ehlers-Danlos Syndrome & Hypermobility Spectrum Patient Symposium Click here for the recording link Note: this is a 6 hour program that you may want to listen to in segments NOTE: Times for each segment are listed below. These are not listed on the video page. The Symposium schedule is as follows: TOPICS INCLUDE: • Welcome […]
Activities at the EDS Society Conference in Las Vegas 9-6 thru 9-8
We participated again in a very successful EDS Learning Conference. Here are connections to activities at the EDS Society Conference in Las Vegas 9-6 thru 9-8 New EDS Physician CME Educational Online Program announced Click here for Jon Rodis EDS Society Conference Summary Click here for Dr. Chopra’s presentation […]
EDS Society Global Conference Summary – Jon Rodis
Jonathan Rodis Founder and Co-leader-Ehlers-Danlos New England/Massachusetts Support Group President-Massachusetts Chapter of The Marfan Foundation Chair-Physician Awareness Committee(s) for Marfan and Ehlers-Danlos Syndrome(s) National Disability and Medical Advocate for Rare Disorders Member: Winthrop Disability Commission EDS Society Global Learning Conference in Las Vegas Recap As I promised, here is my recap of the EDS […]
2017 EDS Learning Conference Registration is Open
The Ehlers-Danlos Society has scheduled the 2017 Ehlers-Danlos Society Global Learning Conference, September 7th-9th, Bally’s Hotel in Las Vegas. Registration details, including prices, are on the link below. Click here for registration information. We will be a conference sponsor again for the 6th year. Please visit with us at our EDS Awareness booth. Contact […]
Dr. Tinkle Edits EDS Special Supplement for American Journal of Medical Genetics
Dr. Tinkle Edits Ehlers-Danlos Sydrome Special Supplement for American Journal of Medical Genetics. Dr. Tinkle also served as an author / co-author for one-third of the papers in the supplement: The Ehlers-Danlos Syndromes: Reports from the International Consortium on the Ehlers-Danlos Syndromes PRZen / CHICAGO — Left Paw Press congratulates Dr. Brad T Tinkle […]
Popular Posts
Ehlers-Danlos Syndrome May Increase Susceptibility to Infections
EDS, POTS and MCAS Linked by One Gene Mutation
Popular People With Ehlers-Danlos Syndrome
In memory of John Ferman, Founder and President of Chronic Pain Partners / EDS Awareness
EDS Physical Therapy Book & Free Webinar: “Living Life to the Fullest with Ehlers-Danlos Syndrome”