Archive for the ‘Conferences’ Category

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New Strategic Marketing Resource for Ehlers Danlos National Foundation

Posted on September 12, 2014

We are pleased to announce: Jane Mitakides has been appointed to the Ehlers-Danlos National Foundation (EDNF) board of directors. Her husband, Dr. John Mitakides, is one of our Educational Webinar speakers and a well-known EDS / TMJ expert. Jane has a background in strategic marketing and communications, and will be a valuable asset to the EDNF. She […]

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5th Annual New England Marfan Syndrome and Connective Tissue Disorders Symposium

Posted on August 20, 2014

Join us on Saturday, September 13, 2014  in Manchester, NH.  A full day discussion for patients, family, and healthcare professionals addressing Marfan Syndrome, Ehlers-Danlos, Loeys-Dietz Syndrome, and other related connective tissue disorders   Supported by Ambrey Genetics, The Marfan Foundation, MA Chapter and the NH/VT Network of the Marfan Foundation Drs. Hal Dietz and Brad […]

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Australia’s 1st Ehlers Danlos Syndrome Conference was Attended by 300

Posted on July 26, 2014

It was a well-attended 3-day event!  Australia’s First EDS Conference attracted EDS experts, including physiotherapists, cardiologists, gastroenterologists, and US Geneticist Dr. Brad Tinkle. “Parramatta welcomed the first national conference for Ehlers-Danlos Syndrome (EDS) on July 19 and 20, a debilitating disorder causing fragile joints, skin and muscles. The three day event filled Novotel Parramatta’s Lennox room with almost 300 […]

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Australian “Jelly-Jointed Sisters” Fight Ehlers Danlos Syndrome Together

Posted on June 26, 2014

We are very excited about the addition of our first Australian Group to our Ehlers Danlos Syndrome Support Group Family! By DANIEL BATEMAN.   Elyshia and Emily Hickey may appear to be typical, healthy teenage girls. On the inside, however, they are battling a rare genetic disease that has given them the joints of elderly women. The Cairns […]

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Australia’s 1st Ehlers-Danlos Syndrome Conference Coming to Sydney in July 2014!

Posted on April 3, 2014

This is an exciting opportunity for EDSers in Australia to attend their very own Ehlers-Danlos Syndrome Conference!  ConnecTeD Foundation and EDSAUS have been working hard to bring you the best speakers we can find and to offer you the best chance to network with other families and/or persons with EDS or related conditions. With the […]

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Dr. Brad Tinkle Appointed Medical Advisor for the Hypermobility Syndromes Association

Posted on February 3, 2014

Read this is an exciting announcement from the Hypermobility Syndromes Association!  We congratulate Dr. Tinkle and thank him for his exemplary & ongoing service to the EDS community! The HMSA is very pleased to announce that Dr Brad Tinkle has agreed to join the Hypermobility Syndromes Association as a Medical Advisor! Many of you will remember […]

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