Autonomic Dysfunction & Pots

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New Research Study Finds Everything is Connected, As Many Patients Suspected

A wake-up call to the medical community sent directly with data from commercial health insurers A new study focused on the prevalence of multisystem diagnoses among hypermobile Ehlers-Danlos Syndrome (hEDS) patients sheds light on a critical aspect of this complex condition: the widespread systemic impact it has on the body and the connection to other […]

people discuss about graphs and rates

Research Round-Up, Edition 2

→ BREAKING NEWS: Study finds biomarker that could lead to a blood test for hEDS & HSD ← Welcome back to the Research Round-Up, a summary of medical news you can use. We’ve got a lot of great research for you this month, so giddy up and git going! Yee-haw! If you have an article […]

A black and white image of a small table near a wooden wall. The table is stacked haphazardly with books and papers.

Research Round-Up, Edition One

Welcome, pardner, to our new feature, Research Round-up! In each issue, we’ll bring you summaries of some of the latest EDS research to hit the medical journals. We’ll usually have five or so articles, but we’ve got a special edition this time—10 articles for your information and enjoyment! Yee-haw! Hitch up your horse, grab a […]

A thermostat showing more than 30 degree celsius and a bright sky with sun.

POTS, EDS, and the Scorching Sun: Heat Intolerance & Your Summer Survival Guide

Welcome to the sizzling chronicles of summer, a time when we embrace the sun-kissed longer days, BBQs, and hopefully beach trips! But what if I told you that for some folks, this wonderful season feels more like a daunting endurance test than a relaxing vacation? Today, we delve into the sweltering world of Heat Intolerance, […]

A network of nerve cells.

AI Meets Medicine: Can ChatGPT Unlock Answers to Your Medical Questions?

By now, you’ve probably heard the buzz around artificial intelligence (AI) and the hottest new thing in ChatGPT. ChatGPT is growing more rapidly than TikTok – currently averaging a user base of 13 million people every day! Talk about a craze, and it got us thinking. The Chronic Pain Partners media team was curious about […]

An illustration of a blue and purple nerve cell and a magnifying glass on yellow background. Text: New research on EDS, POTS & SFN. Small Fiber Neuropathy is a Common Feature in HEDS, Research Finds.

Small Fiber Neuropathy is a Common Feature in Hypermobile EDS, Research Finds

New research by a German group of scientists published in the European Journal of Neurology seeks to understand  if there is an underlying common cause among hypermobile EDS (hEDS), small fiber neuropathy (SFN), and postural orthostatic tachycardia syndrome (POTS). Their research sheds light on a possible common mechanism behind those three conditions.  SFN, POTS & […]

Doctor said it was all in her head, but it was ‘the most common condition’

POSTED 5:48 AM, JUNE 26, 2018, BY CNN WIRE, UPDATED AT 07:37AM, JUNE 26, 2018 Fox 59 File photo Super Bowl MVP Nick Foles is ecstatic about leading the Philadelphia Eagles to victory, but that’s not the triumph he celebrates daily. He gives that medal to his wife, Tori Foles, for what he calls her “amazing strength” […]

“POTs and EDS” Webinar by Dr. Henry Burkholder – Recording Available

  EDS Awareness invites you to watch this FREE webinar recording!    Sponsored by: www.bodysupportstore.com     Dr. Henry Burkholder  presents “Postural Orthostatic Tachycardia Syndrome (POTs) and EDS”. He is a Pediatric Cardiologist and presenter at the 2014 EDNF Conference in Houston, TX.         PRESENTER:  Dr. Henry Burkholder, Pediatric Cardiologist   TOPIC:   Postural Orthostatic […]