Archive for the ‘Autonomic Dysfunction & Pots’ Category

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Racing Wheelchair Helps EDS Teen Participate in School Sports

Posted on June 1, 2013

Michael was diagnosed with EDS at age 10. He also suffers from Dysautonomia, which is fairly common in the EDS population. He is able to remain active in basketball and track using his own wheelchair.   Gulf Coast News Today ROBERTSDALE, Alabama — “Michael Parnell, the 13-year-old son of Silverhill resident Tia Parnell, was recently presented […]

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EDS / POTS Patient Promotes Awareness

Posted on May 22, 2013

Catherine is suffering with Ehlers-Danlos Syndrome (EDS), Postural Orthostatic Tachycardia Syndrome (POTS), Crohns disease and many other health conditions. She leads a support group in the UK and is very passionate about EDS awareness. “Catherine Eves is on a local mission to raise awareness of what she describes as her “invisible illness.” At the age […]

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Dana Describes Her Journey with POTS

Posted on January 26, 2013

Hello everyone! My name is Dana and I suffer from POTS (Postural Tachycardia Syndrome). I decided to create this channel to reach out to others who have this disorder too. About me: I have had POTS since I was 16 years old. I am now 28. (Had a birthday in April) I tend to have […]

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Practical Parenting Tips for those with Physical Limitations

Posted on September 20, 2012

by Jennie Macdonald  As someone who suffers from two chronic illnesses (Ehlers-Danlos Syndrome and Postural Orthostatic Tachycardia Syndrome) that include fatigue and joint pain as my two major limitations, I understood the extreme need to be efficient with my time and energy in my early years of parenting. For me, a main priority was to […]

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