Vascular/Cardiac
Research Round-Up, volume 2
→ BREAKING NEWS: Study finds biomarker that could lead to a blood test for hEDS & HSD ← Welcome back to the Research Round-Up, a summary of medical news you can use. We’ve got a lot of great research for you this month, so giddy up and git going! Yee-haw! If you have an article […]
Research Round-Up, Edition One
Welcome, pardner, to our new feature, Research Round-up! In each issue, we’ll bring you summaries of some of the latest EDS research to hit the medical journals. We’ll usually have five or so articles, but we’ve got a special edition this time—10 articles for your information and enjoyment! Yee-haw! Hitch up your horse, grab a […]
Got the Barometric Blues?
Strategies For Managing the Impact of Changing Weather Patterns Tomorrow’s weather forecast for your joints? Cloudy with a chance of pain. There’s a long-held scientific belief that worsening weather can increase aches in your joints, according to the Cleveland Clinic, especially for conditions like arthritis and fibromyalgia. We don’t really fully understand why, but for […]
Free Webinar: “Update on Complications and Rare Forms of EDS” – Recording Available
Watch the recording of this free webinar. Dr. Joan Stoler presents “Update on Complications and Rare Forms of EDS”.
Triathletes Face Ironman Test to Help Boy with Ehlers-Danlos Syndrome
By Neil Metcalfe. Hugo Whatton is a 3-year-old with Vascular type Ehlers-Danlos Syndrome. His caregivers must be very cautious in handling him and preventing injuries which could be life-threatening. Kim and Alasdair Hutt of Laurel Avenue, Potters Bar, will tackle a 2.4 mile swim, a 112 mile bike ride and to finish off, they will […]
Free Webinar: “Connective Tissue Disorder Research” by Dr. Hal Dietz – Recording Available
Watch this FREE educational video! _ Dr. Hal Dietz presents “Connective Tissue Disorder Research” Sponsored by www.bodysupportstore.com TOPIC: “Connective Tissue Disorder Research” PRESENTER: Dr. Hal Dietz _ _ Click here for the recording of this presentation Click here for the slides used in this presentation __ About our speaker: Dr. Hal Dietz – Dr. Dietz is […]
Double-jointed? Often in Pain? It Could be Ehlers-Danlos Syndrome!
Ehlers-Danlos Syndrome (EDS) was once thought to be a rare disorder, but EDS experts say its prevalence is under-estimated and its diagnosis is often missed! Learn the signs. By Abi Jackson _ If you suffer from these ailments, you could have EDS – a rare condition of the joints. Here’s what you need to know. If you don’t know […]
New Program for Vascular Ehlers-Danlos Syndrome
Vascular Ehlers-Danlos Syndrome is the most devastating type of EDS. It’s a disease so rare that only one out of every 250,000 people will be diagnosed with it. The DEFY Foundation was started by two students at West Chester University.
