Learn more about us. My name is John Ferman. I am the president of Chronic Pain Partners, a non-profit 501(c)(3) organization. My daughter Deanna and I created our Ehlers Danlos Awareness program in 2011 to help support those with a genetic disorder called Ehlers-Danlos Syndrome (EDS.)
www.EDSawareness.com is an online resource for the Ehlers-Danlos Syndrome community, individuals suffering with EDS and their caregiver networks.
The mission of EDS Awareness is to ensure greater understanding of Ehlers-Danlos Syndrome by patients, the general public and within the medical community – in order to improve the quality of life for those affected by EDS – and those who care for them.
Website content is presented “by EDSers, for EDSers” – therefore, it is driven by user participation and learning – for the benefit of all EDSers. The greater the participation, the greater the value to the whole community.