Comment Policy

At Chronic Pain Partners/EDS Awareness, we seek to build a friendly environment for our readers and users. Below are the guidelines we hope will help create and maintain this community. The comments are moderated by the admin(s) at Chronic Pain Partners to make sure the comments section remains a safe and inclusive place for all who visit.

General Guidelines

  • Use your real email address and real name. Our writers put their names on their writing. We’d like our commenters to do the same.  
  • Let’s keep it friendly: Be polite. Respect others. Don’t curse, attack anyone, or be offensive. Leave name calling out of it.
  • Read and understand the whole article before giving your opinion. Do your own research before criticizing our content. 
  • Avoid comments about anything illegal (including the use of medicinal marijuana or other drugs that are legal in some places, but not others).
  • Constructive feedback is welcome, but comments that add no value to the conversation will be deleted.
  • No promotions or spam. You can mention helpful products or websites, but do not simply comment to promote your or anyone else’s product.
  • The tone of the written word is not always obvious, so make sure your intent and meaning is clear.
  • Please don’t shout: no comments in all caps.
  • Limit your use of emojis. These can make comments harder to read, as not every emoji has the same meaning to everyone. They also are inaccessible to people with low vision and don’t always render, so use them sparingly.

 

Policy for using others’ names in your comments

Please refrain from disparaging  anyone in your comments, but especially specific medical providers’ names, names of clinics or hospitals, names of medical organizations, or insurance companies positively or negatively. These comments will not be approved. Speak in generalities, like “the hospital near where I live” or “my pain management doctor.” We understand that medical providers can be excellent and do a world of harm, but we do not want to endorse or disparage anyone.

 

Policy for links in the comments

Don’t put any link(s) in the comments.

We don’t want to lead anyone to spam or content they don’t want to see or that Chronic Pain Partners doesn’t endorse. Our small but mighty volunteer crew doesn’t have the time to verify every link. If you want to provide a link, simply include enough information about it that it can be found by searching with a search engine (Google, Bing, etc).

Examples:

      I was reading an article in People magazine titled “Six Celebrities with Disabilities.”

      I really like the topical pain reliever I’m using. It’s called Pain-A-Way and it’s available on Amazon.

      There’s a really cool documentary about this called “EDS & Me”. I found it on YouTube but it might be
      available other places.

Why has your comment been rejected?

Your comment on Chronic Pain Partners has been rejected because of one or more of the following reasons:

  • Your comment is a personal attack.
  • Your comment includes hate speech, insults or other offensive sentiments.
  • You have put spam links (promotional or personal).
  • You have shared misleading or blatantly incorrect information.
  • Your comment is out of context.
  • You’ve shared something illegal or that could get someone else into legal trouble.
  • It’s written in ALL CAPS or a foreign language. Most of our visitors are English-speaking, and we don’t have the time or resources to translate comments that are in languages other than English.
  • You specifically mentioned doctors or other medical providers, clinics, medical organizations, or companies by name.
  • You did not use your real identity (email and name).
  • You included a physical address, phone number(s), or email address(es).

We will not approve your comment(s) if we find any of the reasons mentioned above in your comment(s). While we would like to email each person’s comment we don’t approve, we are a small team of volunteers. If you have questions as to why your comment was rejected, contact us at https://www.chronicpainpartners.com/contact-us/

If our moderators find you repeatedly violating our guidelines, you will be warned once, then banned from commenting on our website.


Chronic Pain Partner’s Comment Rights and Liability
 

We have the right to edit (within reason, without changing the meaning of the comment), remove or delete your comment(s) on the Chronic Pain Partners website.

While we try to post every comment in a timely manner and offer a response from a member of the Chronic Pain Partner’s staff, we may fall behind at times and may not be able to offer a complete response. We hope our community of fellow commenters  joins the conversation to answer questions and offer suggestions.

 Some articles will not have the comment section open, a decision made by the administrators for a number of reasons. We may also close comments if the discussion is devolving into offensive, unhelpful statements, and/or personal attacks. Articles that are older may also have comments closed.

 By posting your comment(s) on Chronic Pain Partners, you should not share any of your personal data like phone number, address etc. You take full responsibility for your own opinion(s) and your contributions, and Chronic Pain Partners is not responsible for the content or resultant action taken due to your comments.

Our writers are volunteers, and, unless specified, are not experts. We are sharing interviews, research, and information we find through various channels. Personal stories are the experience of the person telling the story, not the author, unless noted.

Happy commenting!

If you have any doubt, contact us at https://www.chronicpainpartners.com/contact-us/

 

 

 

 

 

 

 



Get Webinar Announcements And Our FREE Guide

Support EDS Awareness

See all upcoming events

Upcoming and Previous Webinar Speakers

  • webinar-image

    Ross A. Hauser, MD
    10 Low-cost ways to improve symptoms of peripheral joint and spinal instabilities from hEDS, including brain fatigue, pain, POTS, MCAS and more.

    Learn More

  • webinar-image

    Bonnie Nasar RDN
    “How to Build an EDS Plate: Feel Better with Food”?

    Learn More

  • webinar-image

    Presenter: Jeannie Di Bon   MA PMA-CPT
    Title: “A Pain in the Hypermobile Neck”

    Learn More

  • webinar-image

    Presenter: Dr. Eli Penn
    Title: hEDS and the Gastrointestinal Tract

    Learn More

  • webinar-image

    Pradeep Chopra, MD
    “Management of Long Covid with EDS”

    Learn More

  • webinar-image

    Eloise Stager, LMT, CST-D
    “The Role of CranioSacral Therapy in
    Pain Management and ANS Regulation”

    Learn More

  • webinar-image

    Anne Maitland, M.D., Ph.D
    “Beyond allergies- mast cell activation diseases!”

    Learn More

  • webinar-image

    Clair Francomano MD
    “EDS and Hypermobility Spectrum Disorders – Overview of Diagnosis and Management”

    Learn More

  • webinar-image

    Sonny Mullen
    “A Guide to Medical Fundraising”

    Learn More

  • webinar-image

    Karina Sturm
    New Feature-Length Ehlers-Danlos Documentary
    “We Are Visible”

    Learn More

  • webinar-image

    Podcast Interview with Karina Strum
    ‘We are Visible’ Podcast Interview

    Learn More

  • webinar-image

    Andrea Julian
    “Starting and Maintaining a Successful Support Group”

    Learn More

  • webinar-image

    Maria Dastur, M.B.A.
    Organizing and Managing your Facebook and Social Media

    Learn More

  • webinar-image

    Alan G. Pocinki M.D.
    Sleep Disorders in EDS

    Learn More

  • webinar-image

    Ross A. Hauser, MD
    Consequences and Resolution of Joint Instabilities in H- EDS

    Learn More

  • webinar-image

    Bonnie Nasar RDN
    “Optimizing nutrition to Decrease Brain Fog, Fatigue, & Pain”

    Learn More

  • webinar-image

    Jeannie Di Bon. MA, PMA-CPT
    “How can Pilates help with my EDS Symptoms”

    Learn More

  • webinar-image

    Petra Klinge MD
    “Managing Life with Neurological Symptoms and EDS”

    Learn More

  • webinar-image

    Cathy L. Pederson, Ph.D
    “Understanding the Relationship between Chronic Illness and Suicide”

    Learn More

  • webinar-image

    Patrick Agnew DPM
    “Foot and Ankle Treatments for EDS”

    Learn More

  • webinar-image

    Susan Tran, PhD
    “Partnering with Families to Improve Functioning in Youth with EDS”

    Learn More

  • webinar-image

    Paolo A Bolognese, MD
    Chiari I Malformation, EDS, and Craniocervical Instability

    Learn More

  • webinar-image

    Lauren Stiles, JD
    “Understanding the Relationship Between Ehlers-Danlos Syndrome and Postural Orthostatic Tachycardia Syndrome”

    Learn More

  • webinar-image

    Jordan Tishler, MD
    Medical Cannabis – Pain Relief for EDS

    Learn More

  • webinar-image

    Jeannie Di Bon, MA, PMA-CPT
    “Strengthen and Control Your Hypermobile Core With Pilates”

    Learn More

  • webinar-image

    John Ferman
    Online EDS Physician CME Education

    Learn More

  • webinar-image

    Anne Maitland, MD, PhD
    “Mast Cell Activation Disorder”

    Learn More

  • webinar-image

    Joshua Milner, M.D.
    “Update on Tryptase Research”

    Learn More

  • webinar-image

    Delia Chiaramonte, MD
    “Practical Stress Management: A Mind-Body Approach”

    Learn More

  • webinar-image

    Manu Sood, MD
    Katja Kovacic, MD
    “Gastrointestinal Motility Disorders and Cyclic Vomiting”

    Learn More

  • webinar-image

    Gisela Chelimsky, MD
    “Hypermobile EDS and Gastrointestinal Issues”

    Learn More

  • webinar-image

    Pradeep Chopra, MD
    “Management of complex pain in children and adults with EDS”

    Learn More

  • webinar-image

    Pradeep Chopra, MD
    “EDS Pain Management – Connecting the DOTS… part 3”

    Learn More

  • webinar-image

    Dr. Ajoy Sarkar
    “Ehlers-Danlos Syndrome Hypermobility Type in the UK: Missed or Just Misunderstood?”

    Learn More

  • webinar-image

    Sara Williams, PhD
    “Biofeedback: Training your Body to Relax”

    Learn More

  • webinar-image

    Jan Dommerholt, DPT
    “Physical Therapy for EDS – Part 2”
    Why does it hurt all of the time?

    Learn More

  • webinar-image

    Markus-Frederik Bohn, PHD
    “Tenascin X and Ehlers-Danlos Syndrome”

    Learn More

  • webinar-image

    Dr. Marco Castori

    “Multidisciplinary Diagnostic and Management Approach to the EDS Patient”

    Learn More

  • webinar-image

    Professor Claude Hamonet and Dr. Isabelle Brock

    “A French Perspective on Ehlers Danlos”

    Learn More

  • webinar-image

    Dr. Delia Chiaramonte

    “An Integrative Approach to Pain Management”

    Learn More

  • webinar-image

    Dan Doherty — YouScript / Genelex Corp.

    “Pharmacogenetic Testing to Assess Altered Drug Metabolism”

    Learn More

  • webinar-image

    Dr. Alan Pocinki

    “Psychiatric Misdiagnoses in EDS: When is Anxiety not Anxiety?”

    Learn More

  • webinar-image

    Dr. William Ericson

    “Orthopedic Issues in the EDS Hand, Wrist and Arm”

    Learn More

  • webinar-image

    Dr. Norman Marcus

    “EDS & Pain”

    Learn More

  • webinar-image

    Dr. Lawrence Afrin

    “Mast Cell Activation Syndrome”

    Learn More

  • webinar-image

    Diane O’Leary, PhD

    “All in Your Head”: The Problem of Psychogenic Diagnosis for Ehlers-Danlos Patients

    Learn More

  • webinar-image

    John Ferman and Deanna Hamm

    “World-Wide EDS Survey Results” by EDS Awareness
    (2544 respondents from 26 countries)

    Learn More

  • webinar-image

    Sara Williams, PhD

    “Cognitive Behavioral Therapy as a Coping Skill for EDS”

    Learn More

  • webinar-image

    Dr. Anne Maitland

    “Mast Cell Activation Syndrome in EDS Patients (Part 2)”

    Learn More

  • webinar-image

    Dr. Neil Schechter

    “Chronic Pain Hypermobile Children”

    Learn More

  • webinar-image

    Karen Foulks, OTR/CHT
    Jesse Garris, Silver Ring Splint Co.

    “Anatomy and SilverRing™ Splints for Ehlers-Danlos Hands”

    Learn More

  • webinar-image

    Dr. Holly Gilmer

    “Chiari Malformation in EDS”

    Learn More

  • webinar-image

    Dr. Blair Grubb

    “Postural Orthostatic Tachycardia Syndrome (POTs)”

    Learn More

  • webinar-image

    Trish Meegan, DPT, L, ATC

    “Physical Therapy for EDS: Including how your posture and thorax/ribcage affects your PT program”

    Learn More

  • webinar-image

    Dr. Patrick Agnew

    “Soft Tissue Surgery in Collagen Disease (for EDS Feet & Ankles)”

    Learn More

  • webinar-image

    Dr. Petra Klinge

    “Tethered Cord Syndrome in Ehlers-Danlos”

    Learn More

  • webinar-image

    Kelly Clancy, OT

    “New and Emerging Manual Therapy Approaches for EDS”

    Learn More

  • webinar-image

    Dr. Clive Bridgham

    “Chronic Pain Alternatives – with focus on inflammation and nutrition”

    Learn More

  • webinar-image

    Kevin Muldowney, MSPT

    “Physical Therapy Protocol for Ehlers-Danlos Syndrome” (using the new EDS Physical Therapy Book)

    Learn More

  • webinar-image

    Dr. Mitzi Murray

    “How, Why and When: Genetic Testing in EDS for the Non-Geneticist”

    Learn More

  • webinar-image

    Ellen Lenox Smith

    “Living Life Again with Dignity Using Medical Marijuana”

    Learn More

  • webinar-image

    Dr. Joan Stoler

    “Update on Complications and Rare Forms of EDS”

    Learn More

  • webinar-image

    Jennifer Ortiz, MPT, WSC

    “Physical Therapy for Sexual Dysfunction in EDS”

    Learn More

  • webinar-image

    John Ferman

    “Support Groups for Ehlers-Danlos Syndrome”

    Learn More

  • webinar-image

    Dr. John Mitakides

    “Musculoskeletal Headaches in EDS”

    Learn More

  • webinar-image

    Dr. Patrick Agnew

    “Foot & Ankle Issues with EDS”

    Learn More

  • webinar-image

    Dr. Hal Dietz

    “Connective Tissue Disorder Research”

    Learn More

  • webinar-image

    Dr. Theoharis Theoharides

    “Mast Cell Disorders”

    Learn More

  • webinar-image

    Dr. Brad Tinkle

    “Introduction to Ehlers-Danlos Syndrome”

    Learn More

  • webinar-image

    Dr. Ronald Jaekle

    “Ehlers-Danlos and Pregnancy”

    Learn More

  • webinar-image

    Dr. Manu Sood

    “Gastrointestinal Disorders in EDS”

    Learn More

  • webinar-image

    Dr. Forest Tennant

    “Managing Centralized Intractable Pain in Ehlers-Danlos”

    Learn More

  • webinar-image

    Cynthia Allen, GCFP, STMI

    “The Feldenkrais Method”

    Learn More

  • webinar-image

    Dr. Mark E. Lavallee

    “Exercise is Medicine”

    Learn More

  • webinar-image

    John Ferman

    “Support Groups for Ehlers-Danlos Syndrome”

    Learn More

  • webinar-image

    Dr. Howard R. Epps

    “Orthopaedic Considerations in EDS”

    Learn More

  • webinar-image

    Jan Dommerholt, DPT

    “Physical Therapy for Ehlers-Danlos, Part 1”

    Learn More

  • webinar-image

    Dr. Henry Burkholder

    “Postural Orthostatic Tachycardia Syndrome (POTs) and EDS”

    Learn More

  • webinar-image

    Dr. Peter Byers

    “Vascular Ehlers-Danlos Syndrome / EDS type IV”

    Learn More

  • webinar-image

    Subinoy Das, MD, FACS, FARS

    “Sinus Care for Ehlers-Danlos Syndrome”

    Learn More

  • webinar-image

    Frank Gargano PT, DPT, OCS, CIDN, MCTA, CWT

    “Dry Needling for EDS Pain Management: Can muscle performance be improved?”

    Learn More

  • webinar-image

    Diana Lebron, MD

    “Headaches and Ehlers-Danlos Syndrome”

    Learn More

  • webinar-image

    Shweta Dhar, MD, MS, FACMG

    “Coordination of Care in Adults with EDS”

    Learn More

  • webinar-image

    Kathleen Kane, ESQ

    “Applying for Disability”

    Learn More

  • webinar-image

    Dr. Richard Barnum
    “EDS and Psychiatric Illness Misdiagnoses”

    Learn More

  • webinar-image

    Dr. Anne Maitland
    “Mast Cell Activation Syndrome” Part 1

    Learn More

  • webinar-image

    Dr. Alan Pocinki
    “Chronic Pain, Poor Sleep, Depression, and Fatigue in EDS”

    Learn More

  • webinar-image

    Dr. Derek Neilson
    “Proving the obvious: Next Steps for the Demystification
    of the Ehlers-Danlos Hypermobility Type”

    Learn More

  • webinar-image

    Dr. Peter Rowe
    “Managing Orthostatic Intolerance in EDS”

    Learn More

  • webinar-image

    Prof Joel Lamoure, RPh., DD., FASCP
    “Medical Psychiatry in Pain Management”

    Learn More

  • webinar-image

    Eric Palmer, Orthotist
    “Bracing for EDS”

    Learn More

  • webinar-image

    Dr. John Mitakides
    “TMJ, Cervical Instability and EDS”

    Learn More

  • webinar-image

    Dr. Staci Kallish
    “Cardiac Manifestations in EDS”

    Learn More

  • webinar-image

    “EDS and Pain… Connecting the Dots” Part 2

    Pradeep Chopra, MD

    Learn More

  • webinar-image

    Presenter: Kevin Muldowney, PT Click here for a link to the announcement page Video link is on this page

    Learn More

  • webinar-image

    Presenter: Michael, Healy, DPT Click here for a link to the announcement page  Video link is on this page

    Learn More

  • webinar-image

    Dr. Kenneth Goldschneider
    Pain Management for EDS

    Learn More

Current Poll

How long until you received a proper diagnosis for EDS?

View Results

Loading ... Loading ...