Archive for the ‘Joint Hypermobility’ Category
Posted on January 5, 2016
Watch the recording of this free webinar. Sponsored by www.bodysupportstore.com TOPIC: “Tethered Cord Syndrome in Ehlers-Danlos” PRESENTER: Petra Klinge, MD, PhD Click IMAGE for a link to this recording Click here for a link to the presenter’s slides INVITE YOUR FRIENDS: Spread the knowledge! Please post this announcement on Facebook, and forward this invitation to others who may […]
Posted on December 30, 2015
January 5, 2016
Live Webinar at 7:30 pm EDT
Dr. Petra Klinge (Neurosurgeon) presents “Tethered Cord Syndrome in Ehlers-Danlos”.
Posted on December 2, 2015
Watch the recording of this free webinar.
When you purchase the book through the following link, $1.00 will support EDS Awareness programs.
Posted on December 1, 2015
After 22 years looking for answers, Kara LaFache has finally been diagnosed with Ehlers-Danlos Syndrome. Watch this video TV news report, which brings awareness to the multi-systemic and disabling aspects of EDS. Spread awareness yourself with these EDS Awareness materials! By Skyler Srivastava – WKTV.com UTICA, NY – Characterized by a lack of awareness and mis-diagnosis, […]
Posted on November 23, 2015
Watch the recording of this free webinar. Kelly Clancy, OT and manual therapist, addresses the fascial system and postural components that contribute to pain and dysfunction.
Posted on November 20, 2015
Once you are diagnosed with Ehlers-Danlos Syndrome, it can be an overwhelming process to find supportive medical care and learn ways to live life more efficiently and safely. Get a head start by gleaning some valuable pointers from the experiences of veteran EDSers like Ellen. The information in this article should not be considered as professional […]
Posted on November 14, 2015
British author Angela Clarke’s new book #FollowMe went to number three in the Kindle chart! The crime thriller set in London features a ‘Hashtag Murderer’. Angela was diagnosed with EDS in 2012. Her previous best-selling book is titled Confessions of a Fashionista. ‘This is Angela Clarke’s debut and what a way to kick off. I loved this book from start to […]
Posted on November 2, 2015
Canadians with Ehlers-Danlos Syndrome are desperate for treatment and continue to advocate change in their health care system. MPP Michael Harris is calling for an all-party committee to form a comprehensive strategy on rare diseases. Patients like the Smith siblings are skeptical, but remain hopeful and thankful for community fundraising. By Darcy Cheek, Recorder and Times. You won’t find […]