Archive for the ‘Joint Hypermobility’ Category

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The Reality of Ehlers-Danlos Syndrome

Posted on December 1, 2015

After 22 years looking for answers, Kara LaFache has finally been diagnosed with Ehlers-Danlos Syndrome. Watch this video TV news report, which brings awareness to the multi-systemic and disabling aspects of EDS. Spread awareness yourself with these EDS Awareness materials! By Skyler Srivastava – WKTV.com UTICA, NY – Characterized by a lack of awareness and mis-diagnosis, […]

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Free Webinar: “New and Emerging Manual Therapy Approaches for EDS” – Recording Available

Posted on November 23, 2015

Watch the recording of this free webinar. Kelly Clancy, OT and manual therapist, addresses the fascial system and postural components that contribute to pain and dysfunction.

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8 Tips for Patients Newly Diagnosed with Ehlers-Danlos Syndrome

Posted on November 20, 2015

Once you are diagnosed with Ehlers-Danlos Syndrome, it can be an overwhelming process to find supportive medical care and learn ways to live life more efficiently and safely.  Get a head start by gleaning some valuable pointers  from the experiences of veteran EDSers like Ellen. The information in this article should not be considered as professional […]

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Best-Selling Author with Ehlers-Danlos Syndrome, Angela Clarke, Releases New Book

Posted on November 14, 2015

British author Angela Clarke’s new book #FollowMe went to number three in the Kindle chart! The crime thriller set in London features a ‘Hashtag Murderer’. Angela was diagnosed with EDS in 2012. Her previous best-selling book is titled Confessions of a Fashionista. ‘This is Angela Clarke’s debut and what a way to kick off. I loved this book from start to […]

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Canada’s Treatment of Ehlers-Danlos Syndrome Calls for Change

Posted on November 2, 2015

Canadians with Ehlers-Danlos Syndrome are desperate for treatment and continue to advocate change in their health care system. MPP Michael Harris is calling for an all-party committee to form a comprehensive strategy on rare diseases. Patients like the Smith siblings are skeptical, but remain hopeful and thankful for community fundraising. By Darcy Cheek, Recorder and Times.   You won’t find […]

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Australian PT Receives Well-Deserved Nomination by Ehlers-Danlos Teen

Posted on November 2, 2015

By: Clair Morton.  – Libby Nash, a physiotherapist in Australia, has been nominated by her patient for an award. She is dedicated to helping teen Lily Warren strengthen her joints affected by  Ehlers-Danlos Syndrome. GRAFTON physiotherapist Libby Nash has gone above and beyond to improve the life of teenager Lily Warren, who lives with a rare and debilitating […]

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