Joint Hypermobility
Wellapalooza and the EDS Ride for a Cause
Wellapalooza and the EDS Ride for a Cause. – Our speakers for Wellapaloooza on Saturday, November 14th, 2015 are: 1. Dr. Theoharides themastcellmaster.com 2. Dr. Telair (a naturopath who’s been working with Dr. Francomano) 3. Dr. Pocinki _ – The 2nd Annual EDS Ride for a Cause on Sunday, November 15th, 2015 will benefit EDS […]
Ontario’s Health Ministry hears pleas for Ehlers-Danlos Syndrome support, treatment
Canadians with EDS have not been receiving the treatment they need. Families who have traveled to the U.S. for EDS treatment are seeking reimbursement from the Ontario Health Insurance Plan. Watch the video press conference and interviews with the affected EDS families.
Free Webinar: “An Integrative Approach to Managing EDS” – Recording Available
Watch the recording of this free webinar. – TOPIC: “Managing Medical Zebras – An integrative approach to managing chronic pain, fatigue, and digestive issues associated with connective tissue disorders”. PRESENTER: Heather Purdin, PT Click here for a link to this recording Click here for the slides used in this presentation INVITE YOUR FRIENDS and […]
Free Webinar: “Update on Complications and Rare Forms of EDS” – Recording Available
Watch the recording of this free webinar. Dr. Joan Stoler presents “Update on Complications and Rare Forms of EDS”.
Join Effort by Sending a Birthday Card to Jasmine, Turning 14 with Ehlers-Danlos Syndrome
You can help this courageous EDS girl have “the best 14th Birthday ever” by sending her a Birthday card. Include your encouragement, motivational songs, or positive story — to show her you understand the struggles of EDS. Her Birthday is August 31st, so get your wishes in the mail! Address provided below. __ Watch Jazzy’s story in […]
Triathletes Face Ironman Test to Help Boy with Ehlers-Danlos Syndrome
By Neil Metcalfe. Hugo Whatton is a 3-year-old with Vascular type Ehlers-Danlos Syndrome. His caregivers must be very cautious in handling him and preventing injuries which could be life-threatening. Kim and Alasdair Hutt of Laurel Avenue, Potters Bar, will tackle a 2.4 mile swim, a 112 mile bike ride and to finish off, they will […]
Lack of Clinical Understanding about Hypermobility Conditions and Treatment
By Bill Schu. Many doctors do not understand the clinical significance of joint hypermobility. This has a major impact on accessing appropriate treatments. Mobility is great. Hypermobility? Less great. In the joints, hypermobility leads to musculoskeletal pain – and often times, lots of it. A recent review in the Journal of Pain Research outlined several […]
Dr. John Mitakides Webinar: “Musculoskeletal Headaches in EDS” – Recording Available
Watch this FREE online learning session! Dr. John Mitakides presents “Musculoskeletal Headaches in EDS”. Sponsored by www.bodysupportstore.com TOPIC: “Musculoskeletal Headaches in EDS” PRESENTER: Dr. John Mitakides Click here for the recording of this presentation Click here for the slides used for this presentation About our speaker: Dr. John Mitakides CLICK HERE for more […]
