Archive for the ‘Joint Hypermobility’ Category

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Australian PT Receives Well-Deserved Nomination by Ehlers-Danlos Teen

Posted on November 2, 2015

By: Clair Morton.  – Libby Nash, a physiotherapist in Australia, has been nominated by her patient for an award. She is dedicated to helping teen Lily Warren strengthen her joints affected by  Ehlers-Danlos Syndrome. GRAFTON physiotherapist Libby Nash has gone above and beyond to improve the life of teenager Lily Warren, who lives with a rare and debilitating […]

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Free Webinar: “Living Life Again with Dignity Using Medical Marijuana” – Recording Available

Posted on October 5, 2015

Watch the recording of this free webinar. “Living Life Again with Dignity Using Medical Marijuana” presented by Ellen Lenox Smith.

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Wellapalooza and the EDS Ride for a Cause

Posted on October 1, 2015

Wellapalooza and the EDS Ride for a Cause.  – Our speakers for Wellapaloooza on Saturday, November 14th, 2015 are: 1. Dr. Theoharides  themastcellmaster.com 2. Dr. Telair (a naturopath who’s been working with Dr. Francomano) 3. Dr. Pocinki _ – The 2nd Annual EDS Ride for a Cause on Sunday, November 15th, 2015 will benefit EDS […]

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Ontario’s Health Ministry hears pleas for Ehlers-Danlos Syndrome support, treatment

Posted on October 1, 2015

Canadians with EDS have not been receiving the treatment they need. Families who have traveled to the U.S. for EDS treatment are seeking reimbursement from the Ontario Health Insurance Plan. Watch the video press conference and interviews with the affected EDS families.

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Free Webinar: “An Integrative Approach to Managing EDS” – Recording Available

Posted on September 29, 2015

Watch the recording of this free webinar. – TOPIC: “Managing Medical Zebras – An integrative approach to managing chronic pain, fatigue, and digestive issues associated with connective tissue disorders”. PRESENTER: Heather Purdin, PT Click here for a link to this recording Click here for the slides used in this presentation    INVITE YOUR FRIENDS and […]

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Join Effort by Sending a Birthday Card to Jasmine, Turning 14 with Ehlers-Danlos Syndrome

Posted on August 8, 2015

You can help this courageous EDS girl have “the best 14th Birthday ever” by sending her a Birthday card.  Include your encouragement, motivational songs, or positive story — to show her you understand the struggles of EDS.  Her Birthday is August 31st, so get your wishes in the mail!  Address provided below.  __ Watch Jazzy’s story in […]

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