Joint Hypermobility
8 Tips for Patients Newly Diagnosed with Ehlers-Danlos Syndrome
Once you are diagnosed with Ehlers-Danlos Syndrome, it can be an overwhelming process to find supportive medical care and learn ways to live life more efficiently and safely. Get a head start by gleaning some valuable pointers from the experiences of veteran EDSers like Ellen. The information in this article should not be considered as professional […]
Best-Selling Author with Ehlers-Danlos Syndrome, Angela Clarke, Releases New Book
British author Angela Clarke’s new book #FollowMe went to number three in the Kindle chart! The crime thriller set in London features a ‘Hashtag Murderer’. Angela was diagnosed with EDS in 2012. Her previous best-selling book is titled Confessions of a Fashionista. ‘This is Angela Clarke’s debut and what a way to kick off. I loved this book from start to […]
Canada’s Treatment of Ehlers-Danlos Syndrome Calls for Change
Canadians with Ehlers-Danlos Syndrome are desperate for treatment and continue to advocate change in their health care system. MPP Michael Harris is calling for an all-party committee to form a comprehensive strategy on rare diseases. Patients like the Smith siblings are skeptical, but remain hopeful and thankful for community fundraising. By Darcy Cheek, Recorder and Times. You won’t find […]
Australian PT Receives Well-Deserved Nomination by Ehlers-Danlos Teen
By: Clair Morton. – Libby Nash, a physiotherapist in Australia, has been nominated by her patient for an award. She is dedicated to helping teen Lily Warren strengthen her joints affected by Ehlers-Danlos Syndrome. GRAFTON physiotherapist Libby Nash has gone above and beyond to improve the life of teenager Lily Warren, who lives with a rare and debilitating […]
Free Webinar: “Genetic Testing in EDS” – Recording Available
Watch the recording of this free webinar. Dr. Mitzi Murray presents “How, Why and When: Genetic Testing in EDS for the Non-Geneticist”.
Free Webinar: “Living Life Again with Dignity Using Medical Marijuana” – Recording Available
Watch the recording of this free webinar. “Living Life Again with Dignity Using Medical Marijuana” presented by Ellen Lenox Smith.
Wellapalooza and the EDS Ride for a Cause
Wellapalooza and the EDS Ride for a Cause. – Our speakers for Wellapaloooza on Saturday, November 14th, 2015 are: 1. Dr. Theoharides themastcellmaster.com 2. Dr. Telair (a naturopath who’s been working with Dr. Francomano) 3. Dr. Pocinki _ – The 2nd Annual EDS Ride for a Cause on Sunday, November 15th, 2015 will benefit EDS […]
Ontario’s Health Ministry hears pleas for Ehlers-Danlos Syndrome support, treatment
Canadians with EDS have not been receiving the treatment they need. Families who have traveled to the U.S. for EDS treatment are seeking reimbursement from the Ontario Health Insurance Plan. Watch the video press conference and interviews with the affected EDS families.
