Joint Hypermobility
The Reality of Ehlers-Danlos Syndrome
After 22 years looking for answers, Kara LaFache has finally been diagnosed with Ehlers-Danlos Syndrome. Watch this video TV news report, which brings awareness to the multi-systemic and disabling aspects of EDS. Spread awareness yourself with these EDS Awareness materials! By Skyler Srivastava – WKTV.com UTICA, NY – Characterized by a lack of awareness and mis-diagnosis, […]
Free Webinar: “New and Emerging Manual Therapy Approaches for EDS” – Recording Available
Watch the recording of this free webinar. Kelly Clancy, OT and manual therapist, addresses the fascial system and postural components that contribute to pain and dysfunction.
8 Tips for Patients Newly Diagnosed with Ehlers-Danlos Syndrome
Once you are diagnosed with Ehlers-Danlos Syndrome, it can be an overwhelming process to find supportive medical care and learn ways to live life more efficiently and safely. Get a head start by gleaning some valuable pointers from the experiences of veteran EDSers like Ellen. The information in this article should not be considered as professional […]
Best-Selling Author with Ehlers-Danlos Syndrome, Angela Clarke, Releases New Book
British author Angela Clarke’s new book #FollowMe went to number three in the Kindle chart! The crime thriller set in London features a ‘Hashtag Murderer’. Angela was diagnosed with EDS in 2012. Her previous best-selling book is titled Confessions of a Fashionista. ‘This is Angela Clarke’s debut and what a way to kick off. I loved this book from start to […]
Canada’s Treatment of Ehlers-Danlos Syndrome Calls for Change
Canadians with Ehlers-Danlos Syndrome are desperate for treatment and continue to advocate change in their health care system. MPP Michael Harris is calling for an all-party committee to form a comprehensive strategy on rare diseases. Patients like the Smith siblings are skeptical, but remain hopeful and thankful for community fundraising. By Darcy Cheek, Recorder and Times. You won’t find […]
Australian PT Receives Well-Deserved Nomination by Ehlers-Danlos Teen
By: Clair Morton. – Libby Nash, a physiotherapist in Australia, has been nominated by her patient for an award. She is dedicated to helping teen Lily Warren strengthen her joints affected by Ehlers-Danlos Syndrome. GRAFTON physiotherapist Libby Nash has gone above and beyond to improve the life of teenager Lily Warren, who lives with a rare and debilitating […]
Free Webinar: “Genetic Testing in EDS” – Recording Available
Watch the recording of this free webinar. Dr. Mitzi Murray presents “How, Why and When: Genetic Testing in EDS for the Non-Geneticist”.
Free Webinar: “Living Life Again with Dignity Using Medical Marijuana” – Recording Available
Watch the recording of this free webinar. “Living Life Again with Dignity Using Medical Marijuana” presented by Ellen Lenox Smith.
