Archive for the ‘Joint Hypermobility’ Category

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EDS, POTS and MCAS Linked by One Gene Mutation

Posted on October 17, 2016

Author: Kate Horowitz On a good day, my shoulders, knees, and hips will dislocate two to five times apiece. The slightest bump into a table or door will bloom new bruises on my arms and legs or tear a gash in the thin skin on my hands. My blood pressure will plummet each time I stand, […]

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Nursing Management of Patients with Ehlers–Danlos Syndrome

Posted on September 19, 2016

By Linda K. Anderson, BSN 38 AJN ▼ July 2015 ▼ Vol. 115, No. 7 ajnonline.com CE 2.5 Ehlers–Danlos syndrome (EDS) refers to a group of hereditary connective tissue disorders which together affect an estimated one in 5,000 persons worldwide.1 The condition is likely underdiagnosed because of a lack of familiarity with its various manifestations and a […]

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Ian’s Story: A 4-Year-Old Living with EDS

Posted on July 27, 2016

By Taylor Barth   LINCOLN, Neb. — Ehlers-Danlos Syndrome is a disorder that only impacts about 1 in 2,500 people. According to the Ehlers-Danlos Society, it’s under and mis-diagnosed. For about a year, one Lincoln family has helped their son learn to cope with the syndrome. By sharing his story, they hope to help raise […]

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“Every day I wake up is a blessing” … despite Ehlers-Danlos Syndrome

Posted on July 4, 2016

By Richard Salit, Journal Staff Writer. Ellen Lenox Smith’s recurring injuries and ailments were as baffling as they were disabling. Some doctors thought they might even be psychological. Why was she always in such pain? Why did she have difficulty swallowing? Why did she keep tearing cartilage and ligaments in her knees and shoulders? And […]

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Free Webinar: “Orthopedic Issues in the EDS Hand, Wrist and Arm” – Recording Available

Posted on June 18, 2016

  PRESENTATION TITLE: “Orthopedic Issues in the EDS Hand, Wrist and Arm” PRESENTER: Dr. William Ericson Sponsored by www.bodysupportstore.com  The slides used in this presentation will be posted soon. Click to watch the recording of this presentation  NOTE: There is a small black square on the presenter’s slides that we could not remove. INVITE YOUR FRIENDS: Spread […]

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Fairfield Senior with EDS Takes Her Graduation Walk

Posted on June 11, 2016

By Michael D. Pitman Staff Writer   Elizabeth Schulze worked for years to be able to garner the strength and stamina to walk across the stage and receive her high school diploma. While the act is easy for most high school seniors, it was not for Schulze. Amy Schulze said her daughter, who plans to attend […]

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EDS Physical Therapy Book & Free Webinar: “Living Life to the Fullest with Ehlers-Danlos Syndrome”

Posted on April 29, 2016

Click here to learn about the PT book that is helping EDSers throughout the US! For every purchase made through the following link, $1.00 will be donated to EDS Awareness programs.

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My Wife Had EDS and Did Not Know IT! – 8th Year Anniversary

Posted on April 21, 2016

  This website and its free programs are dedicated to the memory of Carol and thousands like her – who suffer from undiagnosed Ehlers-Danlos…  We were married for 41 years.  You’d think that after all of that time you would know everything there was to know about a person. –          I knew Carol was a […]

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