Joint Hypermobility
High Tryptase Associated with Dysautonomia and POTS
Scientists at the National Institutes of Health have identified a genetic explanation for a syndrome characterized by multiple frustrating and difficult-to-treat symptoms, including dizziness and lightheadedness, skin flushing and itching, gastrointestinal complaints, chronic pain, and bone and joint problems. Some people who experience these diverse symptoms have elevated levels of tryptase — a protein in […]
EDS, POTS and MCAS Linked by One Gene Mutation
Author: Kate Horowitz On a good day, my shoulders, knees, and hips will dislocate two to five times apiece. The slightest bump into a table or door will bloom new bruises on my arms and legs or tear a gash in the thin skin on my hands. My blood pressure will plummet each time I stand, […]
Nursing Management of Patients with Ehlers–Danlos Syndrome
By Linda K. Anderson, BSN 38 AJN ▼ July 2015 ▼ Vol. 115, No. 7 ajnonline.com CE 2.5 Ehlers–Danlos syndrome (EDS) refers to a group of hereditary connective tissue disorders which together affect an estimated one in 5,000 persons worldwide.1 The condition is likely underdiagnosed because of a lack of familiarity with its various manifestations and a […]
Ian’s Story: A 4-Year-Old Living with EDS
By Taylor Barth LINCOLN, Neb. — Ehlers-Danlos Syndrome is a disorder that only impacts about 1 in 2,500 people. According to the Ehlers-Danlos Society, it’s under and mis-diagnosed. For about a year, one Lincoln family has helped their son learn to cope with the syndrome. By sharing his story, they hope to help raise […]
“Every day I wake up is a blessing” … despite Ehlers-Danlos Syndrome
By Richard Salit, Journal Staff Writer. Ellen Lenox Smith’s recurring injuries and ailments were as baffling as they were disabling. Some doctors thought they might even be psychological. Why was she always in such pain? Why did she have difficulty swallowing? Why did she keep tearing cartilage and ligaments in her knees and shoulders? And […]
Free Webinar: “Orthopedic Issues in the EDS Hand, Wrist and Arm” – Recording Available
PRESENTATION TITLE: “Orthopedic Issues in the EDS Hand, Wrist and Arm” PRESENTER: Dr. William Ericson Sponsored by www.bodysupportstore.com The slides used in this presentation will be posted soon. Click to watch the recording of this presentation NOTE: There is a small black square on the presenter’s slides that we could not remove. INVITE YOUR FRIENDS: Spread […]
Fairfield Senior with EDS Takes Her Graduation Walk
By Michael D. Pitman Staff Writer Elizabeth Schulze worked for years to be able to garner the strength and stamina to walk across the stage and receive her high school diploma. While the act is easy for most high school seniors, it was not for Schulze. Amy Schulze said her daughter, who plans to attend […]
EDS Physical Therapy Book & Free Webinar: “Living Life to the Fullest with Ehlers-Danlos Syndrome”
Click here to learn about the PT book that is helping EDSers throughout the US! For every purchase made through the following link, $1.00 will be donated to EDS Awareness programs.
