Joint Hypermobility
Trevor will be Riding 100 miles to Raise Cash for Hypermobility Association
Trevor Sleeman will be riding his bicycle to raise awareness and funds for the Hypermobility Association. [Halstead Gazette] Trevor will take part in a 100-mile bike ride to raise money for people with a painful medical condition after his wife was diagnosed with it. Trevor Sleeman (pictured), 49, will take part in the Prudential 100 bike […]
Ehlers-Danlos Syndrome May Increase Susceptibility to Infections
People with Ehlers-Danlos Syndrome (EDSers) may have higher risk for infections. Fragile skin and poor healing may lead to skin infections. EDSers often have a lowered immune system, possibly due to chronic stress on multiple body systems or an IgG-3 deficiency. By JORAWSTRON People with EDS seem to get more infections than people without EDS, and these infections often […]
Young Mom Diagnosed with “Rare” Genetic Disorder
Watch this TV news video about Enedina Stanger’s journey to Ehlers-Danlos diagnosis after the birth of her second child. (KUTV) Michael and Enedina Stanger’s love story started shortly after she graduated high school. The two eventually got married and they had 2 kids. After the birth of their second daughter, Enedina’s health started to deteriorate. […]
Ehlers-Danlos – “An Accident Waiting To Happen”
Philip Howard was the 88th person in Britain to be diagnosed with Ehlers-Danlos syndrome (EDS). He has written a book about his fight to overcome adversity. Philip Howard’s new book “An Accident Waiting To Happen” tells of living with a rare condition that leaves him prone to falling over and breaking bones. Ben Blosse reports. […]
Free Webinar: “Connective Tissue Disorder Research” by Dr. Hal Dietz – Recording Available
Watch this FREE educational video! _ Dr. Hal Dietz presents “Connective Tissue Disorder Research” Sponsored by www.bodysupportstore.com TOPIC: “Connective Tissue Disorder Research” PRESENTER: Dr. Hal Dietz _ _ Click here for the recording of this presentation Click here for the slides used in this presentation __ About our speaker: Dr. Hal Dietz – Dr. Dietz is […]
Soccer Club Supports Teammate With Ehlers-Danlos Syndrome
Watch this TV news video about Madison whose soccer team helps raise awareness for Ehlers-Danlos Syndrome and funds for Cincinnati Children’s Hospital. The SouthStars Soccer Club Team Lightning hosted a bowl-a-thon at Poelking Lanes South in honor of Madison.
Double-jointed? Often in Pain? It Could be Ehlers-Danlos Syndrome!
Ehlers-Danlos Syndrome (EDS) was once thought to be a rare disorder, but EDS experts say its prevalence is under-estimated and its diagnosis is often missed! Learn the signs. By Abi Jackson _ If you suffer from these ailments, you could have EDS – a rare condition of the joints. Here’s what you need to know. If you don’t know […]
EDS & Chiari “Unite@Night” Walks in Ohio
The May 30th Ehlers-Danlos / Chiari walk in Cincinnati, OH had an over whelming response! In addition to our group members, the walk attracted more than 75 new EDSers and families! Please join us in June for several walks throughout the country!
