Joint Hypermobility
Single Mom Dealing with Ehlers-Danlos Syndrome
Ehlers-Danlos Syndrome makes it difficult for Kristina to accomplish daily living tasks. But, she has been refused disability benefits in Australia on the basis that her condition is ‘curable’. She has trouble driving to her doctor appointments without pain and dislocation. She wants to spread awareness by sharing how EDS affects her daily life. By: Margaret Burin (ABC […]
“The Feldenkrais Method” Webinar by Cynthia Allen – Video Available
Watch this FREE online learning session! Cynthia Allen, GCFP, STMI gave a presentation titled “The Feldenkrais Method and other Somatic Approaches to Improve Function and Ease”. It focuses on movement techniques to increase your body awareness and learning how to improve your quality of movement. Sponsored by www.bodysupportstore.com Click here for a link to […]
Dr. Mark Lavallee webinar “Exercise is Medicine” – Video Recording
Watch this FREE online learning session! Mark E. Lavallee, M.D presents “Exercise is Medicine – especially for Ehlers-Danlos”. He has EDS, classical type and has lectured at many EDNF conferences.
Roslyn’s Quest for a Service Dog to Assist with Ehlers-Danlos Syndrome
In response to one mother’s request for help, proposed legislation requiring insurance companies to provide coverage for the costs for service dogs will be considered by lawmakers in Hartford, CT. Roslyn is navigating the process of obtaining a service dog for assistance with her EDS needs. The community is rallying behind her! By Kathleen Schassler, The […]
10-year-old with Ehlers-Danlos syndrome Joins UWGB’s Softball Team
10-year-old Ellen joins the University of Wisconsin’s softball team as an honorary member. Now, this young EDSer can experience the camaraderie of team sports – without the physical risk. By Korey Mallien. “The chronic pain and fatigue that 10-year-old Ellen Tellstrom deals with every day subsided this week when she met her new college softball teammates. “It was amazing,” […]
Dr. Jan Dommerholt Webinar on “Physical Therapy for Ehlers-Danlos” – Video Recording
EDS Awareness invites you to watch this FREE webinar recording! Sponsored by www.bodysupportstore.com TOPIC: “Physical Therapy for Ehlers-Danlos” PRESENTER: Dr. Jan Dommerholt About our speaker: Jan Dommerholt, DPT Jan is a recognized expert in the physical therapy diagnosis and treatment of persons with chronic pain syndromes, including EDS. He has lectured at EDNF patient […]
Gabrielle’s Personal Battle with Ehlers-Danlos Syndrome
After being diagnosed with Ehlers-Danlos Syndrome, high-school student Gabrielle found comfort with members of the Young Life organization. She found purpose and motivation through her renewed spiritual connection. “Right after I got diagnosed with Ehlers-Danlos Syndrome (EDS) and figured out I could not play volleyball, I truly was devastated. I felt like I was missing out […]
10 year old Toby with Ehlers-Danlos Syndrome Regains Independence
The local community responds to a hospital fundraiser for Toby and buys him a new wheelchair – just in time for Christmas! A ten-year-old who struggles every day with pain and exhaustion due to a debilitating condition can ‘take his independence back’ thanks to a Christmas boost. Toby Skerman was diagnosed with complex Ehlers-Danlos syndrome […]
