Archive for the ‘Joint Hypermobility’ Category
Posted on October 11, 2013
Three weeks ago Theresa was finally diagnosed with Ehlers-Danlos Syndrome, a connective tissue disorder that affects her joints. She finally found a name for the pain! HANOVER — Several months ago, Theresa Selfe decided to take a walk, not realizing how much she would regret it. She sat down for a while after returning home and when […]
Posted on September 29, 2013
Some staff members of Saundersfoot Community School are running, swimming and cycling to raise money for an orthopaedic bed for Beth who has Ehlers-Danlos Syndrome “October will be a busier than usual month for some staff members of Saundersfoot Community School. Inspired by the recent Ironman event, a number of ladies at the school will be […]
Posted on June 10, 2013
This EDS Support Group is promoting EDS Awareness in Lancaster. By EMILY PEIFFER Staff Writer epeiffer@lnpnews.com “You may notice something different when you pay for your morning coffee at Turkey Hill. Donation jars for Ehlers-Danlos Syndrome, a rare genetic disorder, are now at the checkout counters of four local Turkey Hill markets. The driving force behind […]
Posted on June 6, 2013
Many EDS patients are struggling to get their doctors to understand their condition. This “Bill of Rights” is a tool that may help EDSers communicate with doctors. By an_angel_with_wings “The purpose of this Bill of Rights is not to be combative or argumentative. I have experienced all of these things during the time that my […]
Posted on April 20, 2013
The following describes a Holistic Therapy technique used to provide some relief for those of us with Ehlers-Danlos Syndrome. Bowen for Ehlers-Danlos Syndrome Isobel Knight MSc Dip BTAA The Bowen Technique is a gentle form of holistic therapy that was founded in Australia by the late Tom Bowen in the 1960s. Tom, who was a […]
Posted on April 13, 2013
Enjoy the creativity of this EDSer who gets her message across with “stick people” stories, communication cards and signs. At times we need a little humor! Hannah from the U.K. has found an effective way to explain EDS symptoms & needs to the public in a casual and light-hearted tone. Click […]
Posted on August 5, 2012
Kristen Means discusses her journey with EDS. 1 in 10 Americans have hypermobility connective tissue disorders, according to EDS expert, Dr. Fraser C. Henderson, Sr. MD. That’s 30 million people – and we don’t know exactly how many are afflicted with EDS. Many of them suffer daily with invisible pain and chronic fatigue. Ehlers-Danlos Syndrome […]
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